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All About Our Charity
The Lily Foundation was founded in October 2007, following Lily's death to Mitochondrial Disease earlier that year (Lily's story). When Lily was diagnosed, as her parents we tried to understand, However we were overwhelmed by an abundance of medical and scientific literature and still felt as if we knew nothing. We felt completely alone.
After her death, my brother-in-law and Lily's uncle Jonathan Pearce spoke about setting up The Lily Foundation. We haven't looked back.
To date we have exceeded fund raising targets and all expectations.
Management Structure
- CEO - Liz Curtis (Lily's mum) mail to:liz@thelilyfoundation.org.uk
- Company Secretary - Sarah Hanks
- Press Officer - John Curtis
Directors
- Chairperson - Jonathan Pearce
- Treasurer - Helen Rider
- Anthony Blackburn
- John Symons
- Abby Whitfield
- Alison Maguire
- Ben Carter
Patrons
- Lucy Speed
Employees
- Wendy Pursehouse - Administration coordinator mail to: wendy@thelilyfoundation.org.uk