We are keen to support young people who are suffering from Mitochondrial Disease. We are currently looking for ways to do this and at our first family day in 2014 we held a session for young people to discuss how The Lily Foundation can better support young adults aged 16 to 25.
The feedback we had was that interaction with others via social media and in person was really important. So we have pulled together information on groups or blogs we are aware of that support young adults.
Facebook - Mito Adult Support
There is also a Facebook Page that has been set up by two young women, Laura Jakubowski and Susan Warnock, this is a page to support adult sufferers.