Starting the year as we mean to go on

Lily teams up with Rareminds to offer counselling service

Living with a rare condition like mito can bring as many psychological challenges as physical ones. That’s why we’re delighted to be teaming up with Rareminds to offer a new free, confidential online counselling service to individuals and families who are affected by mito.

Increasing awareness – and increasing our team!

There’s a lot going on in the world of mitochondrial disease research right now, and it’s an exciting time in the quest for treatments and an eventual cure. And as the amount of ongoing research has grown, so has our team – meet our new Research Manager, Maria.

“If I can do it, anyone can do it”

As part of our new year Bin the Gym campaign, our Operations Manager Claire tells us why she’s taking on her biggest fitness challenge yet in 2024 – the London Marathon. If you’re inspired by her story, forget renewing that gym membership – sign up for a Lily event instead.