Sponsor Team Lily

We encourage all of our team to set up a JustGiving or Virgin Money Giving Page

Accelerated Free Fall Solo Skydive

On Saturday Silo Dliso will be making this brave solo jump to raise awareness and much needed funds to help us find a cure. Silo's inspiration is his two beautiful baby girls, tragically lost to MD at just 8 weeks and 9 months old. We know Lindi and Thabi will be in your heart and in your head all the way Silo. 

Paul's Sky Punks Skydive - 19th August

A dream team of 18 friends and family are doing a Skydive at Redlands Airfield, Swindon on 19th.  Harry (Paul) Demko, Vanessa Demko, Sophie Demko (who lives with MD), Richard Demko, Samantha Demko, Jamie Carr, Andy Nobbs, Denise Girard, Tom Fuller, Aaron Brown, Glen Brown, John Dyer, Alan Reay, Mark Worthington, Paul Crawford, Scott Robinson, Richard Passmore & Stuart Davis are all making the jump! 

Great North Run (Half Marathon) - 10th September

Starting in Newcastle upon Tyne the route takes runners through the city centre towards the River Tyne, across the iconic Tyne Bridge continuing through Gateshead. The route, lined by thousands of supporters, including live bands leads runners to South Shields where at the top of Prince Edward Road the view of the sea is one of the most welcoming sights along the whole course. This year our fabulous Team Lily runners are: Clare Sutton, Sabyasachi Chowdhury, Marie Wilson-Chapman, Louise Ashton, Martyn Vaughan, Paul Templer, Rachel Webster, Jen Whitehead, Lynne Norman and Laura Irving. We wish them the best of luck with their training and for race day.

Bristol Half Marathon  - 17th September

Stephen Harrington is running this half marathon for us after attending some of our events. Here he saw first hand the effect of Mitochondrial Disease on families and wants to make a difference. Thank you Stephen and good luck.

Chester Marathon - 8th October

Daniel Allen is running the Chester Marathon for us on 8th October. Daniel's inspiration is his fiance's cousin Seb Pitts who has Mitcochondrial Disease. Thanks for your support Dan. We hope you have a great race.

Royal Parks Half Marathon - 8th October

The Royal Parks Foundation Half Marathon takes place each October, starting and finishing in the stunning Hyde Park. Runners take part in the 13.1 mile route through Central London, taking in the spectacular sites of the capital and the beautiful Royal Parks. As well as all of the fantastic runners that take part, thousands of spectators also join us for the Food & Fitness Festival to cheer on their friends and family and share this amazing day. Our 2018 Team Lily for this event are: Helen Xa, Ben Thomas, Ben Carter, Kim Cooper, Victoria Allaway, Katie Walker, Neil Harper, Steve Rowland, Dan Thomas, Kirsten Harding, Jess Dibble, Sarah Hawkins, Ed Riley, Dimi Booth, Susan Wheeler Go Team Lily!! 

Charity Appeal

Daisies for Daisy

Emmy Palmer set up this fundraising group because of her gorgeous daughter Daisy who has mitochondrial disease. The group make and sell "Daisy" inspired gifts to raise money for our charity. Emmy says " I want to raise awareness and funds for research into Mitochondrial disease. In the hope that one day there will be a cure for this debilitating disease" Together we will find that cure Emmy - Thank you 

Team Jacum's Shop

Team Jacum's Shop is a on line shop that sells beautiful hand made gifts made by Liz and Dave Doe. They lost their beautiful Grandson Jacob to Mitochondrial Disease and since his death have decided to use their talents to help other people. We want to say thank you for supporting our charity and joining the fight for a cure in Jacobs memory.  

For Jessica Crafts 

For Jessica Crafts makes beautiful paper-cut gifts lovingly hand designed & cut to celebrate special moments. Inspired by the gorgeous Jessica Newell her aunty Libby is doing this for the 4 special charities her family support including us! Thanks Libby 

Team Hope

Team Hope is a fundraising group inspired by the super special Hope Matthews who has PDH, one of the many different types of Mitochondrial Disease. They are planning lot sof events from runs to cake sales to raise money to help us support families just like hers and find better treatment and cure. Thanks Team Hope you are all amazing.

Team Henry 

Team Henry are raising as much money as they can in 2017 to try to help us find a cure and help families affected by Mitochondrial Disease. Henry has PDH and is such an inspirations to everyone he meets. Good luck Team Henry we are looking forward to sharing all you acheive. 

2017 CPSA Premier League Sporting Clay's Fundraiser

Chris Morgan and Josh Hufton are giving all their winnings and taking a collection bucket to all their shoots in 2017. They are also along with the support of Richard Worthington Clay Pigeon Shooting Association are encouraging others to do the same. This is all in memory of Josh's beautiful daughter Isla who was lost in 2016 to Mitochondrial Disease 

The dates of their shoots are  

Southdown Gun Club - Sunday 26th February
West London Shooting School - Saturday 18th March
E J Churchills Shooting Ground - Saturday 8th April
Barrow Heath Shooting Ground - Sunday 21st May
Sporting Targets - Saturday 10th June (formerly 17th)
Cambridge Gun Club - Saturday 8th July
Honesberie Shooting School - Sunday 13th August
Owls Lodge Shooting School - Saturday 16th September

and Premier Shoots:
Southdown Gun Club - Sunday 26th February
West London Shooting School - Saturday 18th March
E J Churchills Shooting Ground - Saturday 8th April
Barrow Heath Shooting Ground - Sunday 21st May
Sporting Targets - Saturday 10th June (formerly 17th)
Cambridge Gun Club - Saturday 8th July
Honesberie Shooting School - Sunday 13th August
Owls Lodge Shooting School - Saturday 16th September