Ben Carter


I’m Ben and I have the privilege of being Chair of this truly phenomenal charity. I've served on the Board since 2011 and have a personal connection to mitochondrial disease through close family friends. I’m committed to working with Liz and all the Lily team to help deliver on our ultimate aim of finding a cure to this awful disease. During the day I run Menulog, the leading food delivery business in Australia and part of Just Eat, one of the UK’s biggest e-commerce success stories and am based between London and Sydney. I continually look for ways to help take Lily to the next level for our patients, families and supporters.

Jonathan Pearce

Founding President

I work as a football commentator on BBC's Match of The Day. I am also Lily's uncle former Chairman of The Lily Foundation. In August 2007, just 3 months after Lily died, Liz and I sat on the beach and talked about our vision of setting up a charity. A charity to fund research and support look at us.  I am unbelievably proud of what we have achieved and so proud be a part of this growing charity.

Rupinder Bains


I am Rupinder Bains, the Managing Director of Pinder Reaux & Associates Ltd (a specialist media and sports law firm) and I began working for this amazing charity in the capacity of a legal advisor. I was then honoured to have been invited on to the Board of Directors, to work with a strong, determined and dedicated team: helping families suffering from mitochondrial disease. Whilst being a solicitor and heading up my own company pretty much takes up most of my life, I am also on the Board of Directors at The Football Association. What spare time I have, I spend with my husband and two children.

Suzi Saggar


Hi, my name is Suzi and I am proud to have been Lily's godmother. I met Liz when I was four, and we have been inseparable ever since. I was honoured when Liz and Dave asked me to be Lily's godmother. She was an amazing and beautiful little girl. I am a qualified paediatric nurse and I have four children of my own. I am thrilled to be a director of the Lily Foundation as the charity has a very special place in my heart.

John Spyrou


Hi, I am John the newest director of the Lily Foundation. As a lawyer it is easy to get caught up in day to day business without really seeing what is important. Being involved with the Lily Foundation is a way to give something back and be involved in a fantastic cause, that is leading the way in helping children suffering from Mitochondrial disease and hopefully one day finding a cure

Helen Rider


I am a Managing Director within the financial services industry and more importantly, I am Lily’s Auntie. After Lily was born our family experienced some of it’s saddest and most difficult times. I was inspired by the strength of my tiny niece Lily, who in her short life fought  against her fate to teach us about courage and that no matter how little time we have, we can make a huge impact  if we try. Lily’s spirit has lived on and the Lily Foundation is a ‘can do charity’, who has taken on the unknown and is winning. 

John Symons


Having been fortunate enough to have a great friendship with Jonathan Pearce following acting for him as his accountant since 1989, when approached by Jonathan to be a founder member of the Lily Foundation I believed it to be a great opportunity to get involved 'and give something back in life'. I was also confident that I could help spread the word about our charity, by my own clients becoming interested and supportive of such a worthwhile cause. 

Sarah Povey


This charity means business – it’s going places.  I love that.  If the determination, commitment and enthusiasm from all those involved with this charity is anything to go by, the mission will be accomplished.  It’s just a matter of time. I live in Surrey with my boyfriend John  – also an avid supporter of this fabulous charity & the person who introduced me to Lily’s family - and my naughty dog called Ernie. I’m also the UK Marketing Manager for an energy company.