The Lily Foundation is part of a multi-party steering group set up by Genetic Alliance UK to identify key questions that patients, carers and healthcare professionals would most like to see answered through research. Working in partnership with other charities, including the LHON Society and Muscular Dystrophy UK, we have launched a new survey that allows patients and other stakeholders to have their say.
The aim of the so-called ‘Priority Settings Partnership’ is to identify the top ten research priorities that will help set the agenda for mitochondrial disease research both in the UK and worldwide.
The top ten research priorities have been identified and will be announced in February 2020.
