Head of Fundraising at The Lily Foundation - News - The Lily Foundation
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Head of Fundraising at The Lily Foundation


8 July 2024

Looking for a job that will make a big difference? The Lily Foundation are seeking a passionate and experienced senior fundraiser to join our team and help us deliver on our mission of improving the lives of patients and families impacted by mitochondrial disease.

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About the job:

Head of Fundraising

Salary: £43-47k depending on experience

Role includes occasional weekends to support fundraising events

Deadline for application: 16th July

The Head of Fundraising will be responsible for all the charity’s fundraising initiatives and will be tasked with creating programmes, campaigns and activities that generate income from individual and legacy donors, charitable trusts, corporates and related grants to help the charity continue to drive strong financial growth and raise awareness of this devastating condition.

As a key member of The Lily Foundation and as a member of the leadership team, this newly created role will develop and implement a fundraising strategy that will transform the charity’s fundraising activities to support our programmes, medical research initiatives and patient support services.

You will work very closely with the Operations & Marketing Director and the charity’s Chief Executive to ensure that the charity continues to deliver on its strategic goals, and you’ll develop the fundraising strategy and execution of it in partnership with them.


  • Manage the fundraising team, develop and implement the fundraising strategy.
  • Identify and maximise fundraising opportunities, utilising the charity’s donor database and broader network.
  • Build relationships with corporate, legacy and individual donors centred around new fundraising initiatives, ensuring they’re kept informed of charity progress and key milestones.
  • Develop fundraising campaigns and amplify fundraising opportunities around mass participation events and key charity dates.
  • Proactively identify grant opportunities and manage the application process to ensure that grant applications are submitted on time in line with the required criteria.
  • As a key member of the leadership team ensure the charity delivers against its strategy, goals and governance obligations.
  • Manage the fundraising budget and report on fundraising outcomes to the Board of Trustees.
  • Represent The Lily Foundation at networking events, conferences and community gatherings to raise awareness, build relationships and explore potential fundraising partnerships.

Skills and experience:

  • Proven experience in fundraising, either in not-for-profit or consumer sectors, with a track record of developing revenue, generating strategies and fundraising programmes that have delivered successfully against strategic outcomes.
  • Proven experience in working at senior management level.
  • Expertise in using fundraising databases, CRM systems and digital platforms for donor management and engagement.
  • Highly organised and detail-oriented, with the ability to manage multiple projects simultaneously and deliver against deadlines.
  • Data literate with the ability to analyse fundraising performance and report to the key stakeholders.
  • Strong networking and relationship-building skills, with the ability to engage diverse stakeholders, individuals, corporations, community groups and grant-generating organisations.
  • Excellent written and verbal communication skills, with the ability to craft compelling fundraising materials and deliver persuasive presentations.
  • Self-motivated and proactive, with the ability to work independently as well as part of a collaborative team.
  • Passion for The Lily Foundation's mission and a genuine empathy for individuals and families affected by mitochondrial disease.

To apply:

Interested candidates should submit their CV and a covering letter outlining their experience, relevant skills, and why they are interested in this role to [email protected] by Tuesday 16th July. Please include examples of successful fundraising campaigns you have managed.

The Lily Foundation acknowledges the duty of care to safeguard and promote the welfare of children and young people and have a Safer Recruitment Policy. We are committed to recruiting candidates who share this commitment to safeguarding, and therefore we apply robust recruitment and selection procedures to ensure that the people selected are right for the job, and that all candidates are appropriately screened prior to appointment. The Lily Foundation are committed to ensuring equal opportunities for all. We prohibit discrimination throughout all stages of the recruitment process.