Hello supporter,
As we enter a new year, we’re both proud and excited to unveil a new resource for the mito community – The Lily Foundation Guide to Mitochondrial Disease.
For too long, patients and families have been telling us how hard it is to find clear, reliable information about mitochondrial disease, especially when they’ve just received a diagnosis and don’t know where to turn. Our guide aims to change that.
Created entirely in-house by the Lily team, with input from experts and people with lived experience, it explains mito in simple, compassionate language, with clear diagrams and helpful analogies. It covers symptoms, day-to-day management, the science behind the condition and where to find support.
The creation of this guide has only been possible because of the generosity of all our volunteers, donors, fundraisers and supporters. To every one of you who’s run, walked, baked, boxed, danced, donated, cheered us on or attended an official event – thank you for making a difference. Your help has made this resource a reality.
