Fighting mito,
finding hope.
Donate through JustGiving to help The Lily Foundation fight mitochondrial disease and find hope for patients and their families.
Mitochondrial disease, or ‘mito’, is a rare, complex and difficult-to-diagnose genetic disorder that affects people in very different ways. It can affect any organ at any age, and often occurs in babies and young children. There is currently no cure, but we’re working hard to change that, and are the largest charitable funder of mitochondrial research in Europe.
Mitochondrial dysfunction has been identified as a key factor in other more common diseases including dementia, Parkinson's disease, epilepsy and cancer. The research we fund and support not only holds promise for individuals with mitochondrial disorders, but has the potential to benefit millions of others too.
That’s why, despite being a little-known disease, mitochondrial disease could be the key to some of the most important medical breakthroughs of our time.
We want to show you just what it takes to live with mitochondrial disease.
Meet Harry, Mandy, Katie, Tom and Leia, all real people, living with mito every day. Leia and her family show incredible courage as they fight her incurable condition. Harry and his mum Mandy have hope and belief for the future. They all have what it takes – but they can’t do it alone.
With your support, The Lily Foundation can keep providing care for families like these, funding vital research and finding hope where it’s needed most. Do you have what it takes to help us fight mito? Donate today to make a difference.
Our guide will help you make sense of your condition. Find easy-to-understand explainers, science simplified and the reassurance that we’re with you every step of the way.
Raised
since 2007
Families
supported
Donated
to patients
Research projects
funded
Supporters on the Isle of Wight came together in an inspiring show of community spirit last weekend. Thanks to a fun-filled day of football, sunshine and family entertainment, they raised vital funds and awareness for mitochondrial disease in honour of 3-year-old Teddy.
Last week, Team Lily joined leading scientists, clinicians, pharmaceutical companies and patient advocates at Euromit 2026 in Angers, France. Held every 3 years, it’s the world’s largest conference dedicated to mitochondrial disease research, and we were excited to attend to highlight the growing role of patient-led organisations in shaping the future of care.
Carers Week is a time to recognise the millions of people who quietly, tirelessly care for their loved ones every day – and to shine a light on the challenges they face and the strength they show. For Lucy, caring for her son Harry, who lives with mitochondrial disease, is a role that never stops – but is also filled with love, resilience and moments of joy.
If you have any problems please email [email protected]
