Fighting mito,
finding hope.
Donate through JustGiving to help The Lily Foundation fight mitochondrial disease and find hope for patients and their families.
Mitochondrial disease, or ‘mito’, is a rare, complex and difficult-to-diagnose genetic disorder that affects people in very different ways. It can affect any organ at any age, and often occurs in babies and young children. There is currently no cure, but we’re working hard to change that, and are the largest charitable funder of mitochondrial research in Europe.
Mitochondrial dysfunction has been identified as a key factor in other more common diseases including dementia, Parkinson's disease, epilepsy and cancer. The research we fund and support not only holds promise for individuals with mitochondrial disorders, but has the potential to benefit millions of others too.
That’s why, despite being a little-known disease, mitochondrial disease could be the key to some of the most important medical breakthroughs of our time.
Raised
since 2007
Families
supported
Donated
to patients
Research projects
funded
At just 16 years old, Elinor faced challenges most of us will never fully understand. Living with mitochondrial disease – a rare, progressive and currently incurable condition – she experienced pain, exhaustion and uncertainty every day.
Despite her diagnosis, Elinor was full of spirit, strength and insight. She was determined to live her life with courage, and to help others understand what it truly means to live with mito.
This is her story.
Help us to support patients like Elinor, raise awareness of mitochondrial disease and fund research into treatments and a cure.
Help us to fight mito and find hope for everyone affected.
Were you lucky enough to get a place in the ballot for next year’s London Marathon? From dedicated cheering squads to free beer and a massage, here are five great reasons to run this once-in-a-lifetime charity challenge for The Lily Foundation and help fight mitochondrial disease.
Our first-ever northern Comedy Night at Manchester’s legendary Frog and Bucket Comedy Club was a resounding success, raising an amazing £4,000 to help fund vital research and support families affected by mitochondrial disease. Read all about it!
You might have heard us talking about the new LifeArc Centre for Rare Mitochondrial Diseases a lot recently. But what exactly is it, and what will this major milestone really mean for patients in the search for effective treatments? We’ve answered some of the questions you might have to help explain why it matters so much.
If you have any problems please email [email protected]
