Fighting mito,
finding hope.
Donate through JustGiving to help The Lily Foundation fight mitochondrial disease and find hope for patients and their families.
Mitochondrial disease, or ‘mito’, is a rare, complex and difficult-to-diagnose genetic disorder that affects people in very different ways. It can affect any organ at any age, and often occurs in babies and young children. There is currently no cure, but we’re working hard to change that, and are the largest charitable funder of mitochondrial research in Europe.
Mitochondrial dysfunction has been identified as a key factor in other more common diseases including dementia, Parkinson's disease, epilepsy and cancer. The research we fund and support not only holds promise for individuals with mitochondrial disorders, but has the potential to benefit millions of others too.
That’s why, despite being a little-known disease, mitochondrial disease could be the key to some of the most important medical breakthroughs of our time.
We want to show you just what it takes to live with mitochondrial disease.
Meet Harry, Mandy, Katie, Tom and Leia, all real people, living with mito every day. Leia and her family show incredible courage as they fight her incurable condition. Harry and his mum Mandy have hope and belief for the future. They all have what it takes – but they can’t do it alone.
With your support, The Lily Foundation can keep providing care for families like these, funding vital research and finding hope where it’s needed most. Do you have what it takes to help us fight mito? Donate today to make a difference.
Our guide will help you make sense of your condition. Find easy-to-understand explainers, science simplified and the reassurance that we’re with you every step of the way.
Raised
since 2007
Families
supported
Donated
to patients
Research projects
funded
Huge news! Peter Kay has extended his record-breaking UK arena tour this summer with nine extra shows – and profits from ticket sales are being shared equally among three charities, including The Lily Foundation! Revealed exclusively on BBC Radio 2, this incredible gesture will make a massive difference to the families we support.
To mark Bereaved Parents Day on 3rd July, we spoke with Liz, who lost her firstborn daughter Keira to mitochondrial disease 10 years ago. A decade on, Liz is still learning to live alongside grief – raising her younger daughter Chloe, honouring Keira’s memory and navigating a loss that never truly fades.
Carers Week is a time to recognise the millions of people who quietly, tirelessly care for their loved ones every day – and to shine a light on the challenges they face and the strength they show. For Lucy, caring for her son Harry, who lives with mitochondrial disease, is a role that never stops – but is also filled with love, resilience and moments of joy.
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