Fighting mito,
finding hope.
Donate through JustGiving to help The Lily Foundation fight mitochondrial disease and find hope for patients and their families.
Our vision is for a world in which every mitochondrial disease patient has a voice and access to treatment, support to improve their life and, ultimately, a cure.
Together we’re navigating the complexities of mitochondrial disease; today raising awareness of mito across the globe; tomorrow unlocking the cure through pioneering research; forever supporting the mito community and empowering everyone to make a difference.
It’s World Mitochondrial Disease Week this week, and we want to get everyone talking about mito all over the nation. So wherever you live, please get involved and help put mito on the map.
Every other day in the UK, a baby is born who may develop serious mitochondrial disease.
Mitochondrial disease, or ‘mito’, is a rare genetic disorder that can affect people in very different ways. Symptoms can start at any age and can involve any organ in the body. There is currently no cure for mitochondrial disease, and in some cases, it can be life-limiting. However, treatments to manage symptoms are available and there is active research taking place globally to find a cure. Thanks to research, we are learning more daily about mitochondrial disease.
Mitochondrial dysfunction has been identified as a key factor in other more common diseases including dementia, Parkinson's disease, epilepsy and cancer. The research we fund and support not only holds promise for individuals affected by mitochondrial disorders, but also has the potential to benefit millions of others.
That’s why, despite being a little-known disease, mito could be the key to some of the most important medical breakthroughs of our time.
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since 2007
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Donated
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Set Kevin Day on his way as he marches over 60 miles from Spurs to Palace to put mito on the map.
In 2024, 80% of patients do not have a genetic diagnosis for mitochondrial disease, and that’s simply not good enough. Without one, there is no chance of finding a cure, being offered treatment or simply being accepted on a clinical trial. And, possibly the hardest thing of all for some, reproductive options are severely limited.
Last year, Millie and Tony lost their beautiful baby boy, Otto, to mitochondrial disease. For Millie, getting a confirmed diagnosis for Otto was incredibly significant, and here she explains why. It’s stories like theirs that make The Lily Foundation determined to change things.
Help us to support parents like Millie and Tony, and improve the lives of everyone affected by mitochondrial disease.
When they heard the heart-breaking news that their young pal Sophie had passed away from mitochondrial disease, a group of schoolchildren set out to honour their friend and raise awareness of the genetic condition which so many people are still unaware of.
When baby Lily came into the world, no one could have guessed the legacy she would leave behind. To commemorate what would have been her 18th birthday, her family have signed up to take on a very special collective challenge, and they need your support to get them over the line.
The Lily Foundation are delighted to announce the investment of almost £100k into a pioneering new project by a team of researchers to investigate the effects of three different treatments on mitochondrial diseases.
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