The Lily Foundation logo featuring a butterfly, hearts and an 'x' for a kiss

Fighting mito,
finding hope.

Spread the word

Spreading the word about mitochondrial disease is a powerful way to help everyone affected. Keeping mito in the public eye helps to drive research, boost donations to mitochondrial disease charities like ours, increase the chances of early and accurate diagnosis (by educating doctors and patients), and encourage health policymakers to keep improving clinical services. So even if you only tell one person about mitochondrial disease, you’re making an important difference.

Take a Stand

a young girl with her thumbs up, manning a Lily fundraising cake stand, fully of delicious cakes

Setting up a Lily awareness stand is a great way to raise awareness about mitochondrial disease in your community. Our awareness packs include everything you need for your stand, including leaflets, wristbands, stickers, bunting, balloons, pin badges, a fundraising pack, poster, collection box and Lily T-shirt.

Why not ask permission to set up a stand at your local school, supermarket, sports centre or health centre? Any location where there's plenty of passing foot traffic is ideal. If you'd like to get involved please email [email protected] to request a pack.

World Mitochondrial Disease Week

World Mitochondrial Disease Week is celebrated globally during the third week of September, to educate and increase awareness about mito. Those of us directly affected by the disease are very aware of its existence, but there are lots of people out there who have never heard of this rare inherited disorder, so let’s enlighten them!

This year’s awareness week runs from Monday 16th to Sunday 22nd September. We’ll have loads of fun and exciting things planned to help get mitochondrial disease in the spotlight, so please get involved and help raise awareness. We all have the potential to make a huge impact, whether that’s at work, in school or within our local community, so together let’s make this year’s event the biggest yet! 

Mito facts to share

Social media is a powerful medium for raising awareness. To help us keep talking about mitochondrial disease, not just during World Mitochondrial Disease Week, we've put together some hard-hitting facts about mito in all shapes and sizes for you to share on your social media channels.

Add your own personal message if you like, and don’t forget to include the #MitoAware and #WorldMitoWeek hashtags. Find and download all of our facts here.

We've also put together some fun puzzles all about mitochondria to help little ones learn about mito. They’re a great way to get kids involved and start spreading the word too.

Why raise awareness about mito?

Researchers have discovered links between mitochondrial dysfunction and other conditions including Alzheimer’s disease, Parkinson’s, diabetes, cardiac issues and some cancers. Scientists believe that in focusing on mitochondrial dysfunction, they may be able to devise effective treatments and potential cures for mitochondrial disease and help the millions of people who suffer from these diseases too. That’s why it’s so important to spread the word.

Release your inner fundraiser!

Mum, Dad and two children. Their son has mito and is in a wheelchair with a feeding tube

After losing their 18-month-old son, Aidan, to mitochondrial disease, Simon and Lucy have dedicated themselves to supporting other mito families and fundraising to find a cure.

Here the couple share their tips on how to make a difference, from running a marathon to nailing a corporate sponsorship pitch.

Read Simon and Lucy’s top tips