Lucky enough to get a marathon place?
3 October 2017
Were you lucky enough to get a ballot place for the Virgin Money London Marathon 2018? We’d love you to run in support of The Lily Foundation! Here are 5 great reasons why you should........
Lily Golf Day raises £12,500
3 October 2017
Who needs the British Masters when we have our fabulous Lily Golf Day? This year's event, proved a big hit as usual, helped by blue skies and sunshine at the beautiful Croham Hurst Golf Club in Surrey.
Racing to beat mito
3 October 2017
Congratulations to our daring duo Jon Milne and Sailor Swift, who have made a great start to their circumnavigation of the globe in aid of Lily Foundation. Jon and his teddy bear sidekick, who are sailing in the Clipper Round The World yacht race to raise awareness about mitochondrial disease, have already raised over £1000 on the first leg of their voyage.
Lily Research News
3 October 2017
Supporting medical research into mitochondrial disease is a key part of our work at The Lily Foundation. It's consistent with our long term goal of finding a cure for mito, and also brings life-changing benefits to people who are living with the disease today. Starting this month, we're going to be bringing you more news about the research studies we fund, and introducing you to some of the doctors and scientists involved. We kick off here with a look at a promising study underway at University College London.
Mito Awareness Week a toe-tal success!
3 October 2017
The Lily 'Bare Your Sole' campaign for Mitochondrial Disease Awareness Week was a big success, raising awareness in homes, schools, hospitals and businesses across the country.
Blood test could help simplify diagnosis of Mitochondrial Disease
1 September 2017
A recent study has reported that levels of FGF-21 in blood could prove useful in the diagnosis of Mitochondrial Disease, leading to an improved diagnostic pathway that reduces the need for muscle biopsy
Charlie Gard
25 July 2017
Our thoughts and prayers are with Chris Gard, Connie Yates and of course their son Charlie today, as they have been for the last 8 months.
The past months have been a painful reminder for many families who have had to face similar or the same terrible sadness for their children and also a stark reminder for those who may have to face such sadness in the future. These are heart-breaking situations that no parent or child should ever ever have to face.
Mitochondrial Disease is a truly horrible disease for which there is currently no cure.
Yesterday was the culmination of events which highlighted that more research is critically needed and that we must continue to fight to make sure that we do find a cure for Mitochondrial Disease.
Highlights of Euromit 2017
17 July 2017
We are excited to share some recent updates on the diagnosis and potential treatments of Mitochondrial Disease which were discussed at the Patient Meeting of Euromit 2017 in Cologne, Germany.
Epilepsy & Mitochondrial Disease
31 May 2017
Is there a link between Mitochondrial Disease and epilepsy?
Hypoxia treatment reverses brain damage in a mouse model of Leigh syndrome
4 May 2017
A recent study has shown that breathing air with low levels of oxygen could improve survival and reverse brain damage associated with Mitochondrial Disease in a mouse model of Leigh Syndrome.
Neuromuscular Translation Research Conference 2017
4 May 2017
Exciting updates on potential treatments to help in the fight against Mitochondrial Disease from the 10th Neuromuscular Translational Conference in London.
Dystonia Awareness Week
4 May 2017
Interesting research of movement disorders in Mitochondrial Disease.