There’s plenty going on in the mitochondrial disease community, and you can learn all about our work and the support we offer, and read the latest news articles and blogs from across all areas of our charity here.
From personal stories about families affected by a mitochondrial disease diagnosis to the latest mitochondrial research projects and plenty more, why not sign up to our newsletters, and follow us on social media, to ensure you never miss a thing.
Filter by category:
All Articles Support Research Events Personal stories Awareness Fundraising Fitness
Support
18 October 2024
Patients living with mitochondrial disease deal with many unique and complex health challenges. They can face multiple medical appointments or even emergency hospital visits, sometimes with healthcare professionals unfamiliar with mito. We’re delighted to unveil a simple but brilliant solution that empowers mito patients.
Support
Personal stories
9 October 2024
Losing a baby is one of the hardest things any parent will ever go through. To mark the occasion of Baby Loss Awareness Week from 9th-15th October, we spoke with Beth about losing her baby son to mitochondrial disease and how she still carries her grief with her over 14 years later.
Awareness
30 September 2024
A massive thank you to everybody who got involved in this year’s awareness campaign as part of World Mitochondrial Disease Week. A host of activities took place up and down the country thanks to so many of our supporters embracing our mission to put mitochondrial disease on the map.
Research
26 September 2024
Mitochondrial disease often causes balance issues which can lead to patients falling. That can mean additional pain and distress, so we’re investing over £70k in a new research study to develop wearable technology that could enhance balance and ultimately improve quality of life for patients.
Events
Awareness
Fundraising
25 September 2024
Last week comedian Kevin Day embarked on a mammoth ‘March of the Day’ challenge, walking 63 miles across London via thirteen football grounds. His aim was to spread the word about mito during global awareness week, but would his feet hold up and would he make it all the way? Find out more…
Fundraising
25 September 2024
Since 2007 we’ve raised an incredible £10 million, money that’s helped us support those affected by mitochondrial disease and fund research into treatments. We’ve no intention of taking our foot off the gas, so we’re delighted to welcome two new team members to this area of our charity – meet Nina and Victor.
Research
24 September 2024
Our commitment to funding research into treatments for mitochondrial disease is unswerving, so we’re excited to announce that we’ve just invested nearly £80k into a new project that could potentially alleviate symptoms for patients diagnosed with MNGIE.
Awareness
20 September 2024
Every September, hundreds of buildings around the world light up green for World Mitochondrial Disease Week. Why not help us put mito on the map this year by asking a building or landmark in your local area to take part?
Personal stories
Awareness
17 September 2024
When they heard the heart-breaking news that their young pal Sophie had passed away from mitochondrial disease, a group of schoolchildren set out to honour their friend and raise awareness of the genetic condition which so many people are still unaware of.
If you have any problems please email [email protected]
