News

News

Stay connected with the mitochondrial disease community

Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

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All Articles Support Research Events Personal stories Awareness Fundraising Fitness

Awareness Fundraising
30 June 2025

Isle of Wight couple’s epic pilgrimage for mito

Dedicated couple Linda and Paul from the Isle of Wight are walking from Canterbury to Rome – a 1,250-mile pilgrimage route they plan to complete in just 93 days this summer. Their inspiring journey is in honour of three-year-old Teddy, who lives with mitochondrial disease.

Events
25 June 2025

Laughter and generosity at our first-ever northern Comedy Night!

Our first-ever northern Comedy Night at Manchester’s legendary Frog and Bucket Comedy Club was a resounding success, raising an amazing £4,000 to help fund vital research and support families affected by mitochondrial disease.

Events Fundraising
19 June 2025

Five great reasons to run the London Marathon for Lily

Were you lucky enough to get a place in the ballot for next year’s London Marathon? From dedicated cheering squads to free beer and a massage, here are five great reasons to run this once-in-a-lifetime charity challenge for The Lily Foundation and help fight mitochondrial disease.

Fitness
9 June 2025

10 running tips for beginners

Just signed up for a charity run and not sure where to begin? Whether you’re new to running or returning after a break, getting going can feel overwhelming. But don’t worry – with the right approach, you’ll be hitting your stride in no time. Check out our top 10 running tips for beginners to help you train smart, stay motivated and enjoy every step of your challenge.

Support
9 June 2025

10 simple acts of self-kindness for carers of someone with mito

This Carers Week (9th-15th June), we want to take a moment to honour the remarkable strength, resilience and compassion of those who care for someone with mitochondrial disease. Whether you’re a parent, partner, sibling or friend, being a carer can be both rewarding and incredibly demanding, so be sure to be kind to yourself too.

Fitness
6 June 2025

Couch to 5k: running tips for beginners

Have you signed up to a Lily sporting event or charity challenge this year? Are you ready to kickstart your fitness journey? Professional running coach and personal trainer Jenny Dixon shares her top tips to help beginner runners and those returning after a break to stay on track.

Personal stories
2 June 2025

Celebrating Volunteers’ Week with one of our longest-serving supporters

As part of Volunteers’ Week, we’re shining a spotlight on those who help drive The Lily Foundation forward. One of our longest-serving supporters is Peter Bagatti, owner of the beloved Bagatti’s Italian restaurant in Croydon, who has been generously hosting the Lily Italian Night for over a decade.

Research
30 May 2025

FAQs about the LifeArc Centre for Rare Mitochondrial Diseases

You might have heard us talking about the new LifeArc Centre for Rare Mitochondrial Diseases a lot recently. But what exactly is it, and what will this major milestone really mean for patients in the search for effective treatments? We’ve answered some of the questions you might have to help explain why it matters so much.

Events
29 May 2025

Jazz festival hits the right note for The Lily Foundation

We’re delighted to announce that this year’s Battersea Jazz Festival, taking place from 3rd to 12th July 2025, will be supporting The Lily Foundation – with £1 from every ticket sold going directly towards our work fighting mitochondrial disease.

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