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Fighting mito,
finding hope.


There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.

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Personal stories 13 February 2023

What's it like to be rare?

It’s Rare Disease Day on February 28th, so to shine a spotlight on the millions of people around the world living with a rare disease, we asked mito patient Amy to tell us what it’s like to be rare.

Support 3 February 2023

"The one place we can be ourselves"

At the recent 49th British Paediatric Neurology Association conference in Edinburgh, we found ourselves one of just eight exhibitors invited to host a stand and display our work. What’s more, it was with great excitement that we discovered The Lily Foundation were the only charity selected to deliver an oral presentation at the event.

Research 25 January 2023

On the road with the research team

It was a busy end to 2022 for Alison Maguire (Head of Research and Finance) and Katie Waller (Science and Patient Engagement Officer), who have been proudly representing The Lily Foundation at a range of recent events aimed at medical professionals, scientists and researchers.