Fighting mito,
finding hope.

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Stay connected with the mitochondrial disease community

Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

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Fundraising
27 May 2025

When teams come together, incredible things happen

There’s real power in people coming together with one goal: to make a difference in the fight against mitochondrial disease. That’s exactly what happened at Portsmouth High School, where the school community united in a year-long fundraising campaign that’s raised over £13,000 for The Lily Foundation.

Personal stories Fundraising
13 May 2025

Why I made the leap into Lily fundraising

“I couldn’t save my two daughters from mitochondrial disease, but their memory drives me to help others and fight for a brighter future,” writes Sarah Moore, our courageous Corporate Fundraising Manager, who turned heartbreak into hope with a skydiving challenge for The Lily Foundation.

Events Fundraising
30 April 2025

Team Lily raises £125,000 at the London Marathon!

Huge congratulations to our 36 incredible Lily runners who took on Sunday’s London Marathon and raised an astonishing £125,000 to help fight mitochondrial disease. Every single one crossed the finish line – and with the unseasonably hot weather, that was no small feat. You did yourselves, and the mito community, proud!

Events Fundraising
11 April 2025

Sunny skies and big smiles at London Landmarks

What a day! Last weekend, the streets of London were buzzing with energy as Team Lily took on the London Landmarks Half Marathon – and what a race it was.

Events Fundraising
11 December 2024

Years of laughter: Don Ward on The Lily Foundation Comedy Night

We’re thrilled to announce that Alan Davies and Elliot Steel will be joining host Kevin Day and a star-studded line-up for our 2025 Lily Comedy Night! As we eagerly anticipate this event, we reflected on last year’s milestone – the 15th Lily Comedy Night – with The Comedy Store Founder, Don Ward.

Fundraising
28 November 2024

Make your online shopping count this Christmas!

This Christmas, you can help fight mitochondrial disease simply by shopping online! By using charity shopping schemes like EasyFundraising and Give as you Live, you can donate a percentage of every purchase to The Lily Foundation – at no extra cost to you.

Personal stories Fundraising
20 November 2024

A fundraising journey through mitochondrial disease

Sid and Kerry, parents of three from Yorkshire, are navigating a life with the challenges of their son Bill’s mitochondrial disease. Through their dedication to fundraising and involvement of the local community, they’ve found both hope and a strong support network to help them deal with the disease.

Fundraising
11 November 2024

Spread the joy: Christmas gifts that support charity

Christmas is all about giving – whether it’s spending time with loved ones, spreading joy with thoughtful cards and gifts or supporting those in need. This year, why not combine all three by choosing Christmas gifts that give back to The Lily Foundation?

Fundraising
24 October 2024

Spread Christmas cheer whilst supporting The Lily Foundation

This Christmas, get ready to send festive greetings to your loved ones and support a great cause! We’re delighted to announce our partnership with Making A Difference Cards, offering a wide range of personalised charity Christmas cards that directly benefit The Lily Foundation and help us fight mitochondrial disease.

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