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Fighting mito,
finding hope.

News

Stay connected with the mitochondrial disease community

Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

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All Articles Support Research Events Personal stories Awareness Fundraising Fitness

Fundraising
30 April 2026

Team Poppy crosses the line – and a remarkable £300,000 milestone

Last weekend, a team of six incredible runners from Team Poppy took on the London Marathon in support of The Lily Foundation. And as they crossed the finish line, they passed an extraordinary milestone: £300,000 raised for us over the years. A figure that represents a commitment to fundraising and unwavering love for 15-year-old Poppy, who lives with mitochondrial disease.

Fundraising
29 April 2026

Lily’s London Marathon team goes further than ever before

The 2026 London Marathon was a landmark moment for Lily, bringing together our biggest mass-participation team at a sporting event ever! An incredible 52 runners took on the challenge – including some travelling from as far afield as the US and Norway – together raising an astonishing £193,000 to fund vital mitochondrial disease research and support.

Personal stories Fundraising
20 March 2026

Team Hope smashes £50,000 milestone at Bath Half Marathon

Team Hope has done it! Supported by the incredible Swindon running community, Hope’s mum Caroline and friends smashed through their £50,000 fundraising target at the Bath Half Marathon earlier this month. From Parkruns to plane jumps, their determination and generosity are helping us drive vital research and support for families living with mitochondrial disease.

Events Fundraising
9 October 2025

Wanted: a prize that money can’t buy

Every bid at a Lily Foundation auction helps change lives. By donating a unique or ‘money can’t buy’ prize, you can help us raise vital funds to support patients and families living with mitochondrial disease and drive forward the research that gives hope for the future. Your generosity could turn one special occasion into a tangible difference.