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finding hope.

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Stay connected with the mitochondrial disease community

Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

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Awareness
18 December 2025

A year of progress, hope and community – a message from our founder

This past year has brought powerful steps forward for the mito community, from landmark scientific breakthroughs to the incredible efforts of our supporters across the UK. As we take stock of all that’s been achieved, we invite you to read a special message from our Founder and CEO, Liz Curtis, reflecting on the past 12 months and the hope guiding us into 2026.

Personal stories Awareness
12 May 2025

Spotlight on a mito trailblazer on International Nurses Day

International Nurses Day on May 12th celebrates the vital role nurses play in healthcare – and few embody that more than the UK’s only Mitochondrial Nurse Consultant. Here, Catherine Feeney tells us about her unique role, leading her own specialist clinic and providing expert reproductive advice to families affected by mitochondrial disease.