The Lily Foundation logo featuring a butterfly, hearts and an 'x' for a kiss

Fighting mito,
finding hope.

Looking down on a big group of LIly volunteers, all wearing LIly Tshirts and waving up at the camera Looking down on a big group of LIly volunteers, all wearing LIly Tshirts and waving up at the camera

Our mission

We’re working towards a world in which every mitochondrial disease patient has a voice and access to treatment, support to improve their life and, ultimately, a cure.

We are The Lily Foundation and we’re fighting mito and finding hope for everyone affected by it.

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Together we’re navigating the complexities of mitochondrial disease: today raising awareness of mito across the globe; tomorrow unlocking the cure through pioneering research; forever supporting the mito community and empowering everyone to make a difference.”

— The Lily Foundation

There are three key ways in which we’re making our way towards that world:

  • by educating, informing and raising public awareness about mitochondrial disease, its symptoms and prognosis
  • by funding scientific research into mito in order to advance the search for effective treatments and an eventual cure
  • by providing essential, ongoing support to mitochondrial disease patients, their families and designated carers.

Spreading the word to every corner of the globe

Our first-hand understanding and experience of this life-altering inherited disease allows us to educate on the condition, increasing awareness and raising essential funds. We strive to make a difference and provide education surrounding the condition, and everyone is empowered to spread the word within their local communities and further afield. Every day we’re increasing our knowledge about mitochondrial disease, and the more we learn, the more effectively we can work together to find our way.

Investment in research gets results

Supporting medical research is a fundamental aspect of our work, not only because it could potentially lead to a cure but also because it helps to improve lives now. Lily-funded research projects have already resulted in faster, less invasive patient diagnosis and helped affected families to have healthy babies. Several promising avenues for new treatments are also currently being explored, and the patient voice is at the heart of everything we do.

We’re with every patient on their journey

Mitochondrial disease is a very complex condition, and we’re navigating its complexities together, learning more about it every day. It affects people medically in a wide variety of ways, and every individual has their own needs and different – often very difficult – choices to make. We respect every family’s right to choose their own path in dealing with the disease.

We’ve built a close-knit community with compassion, kindness and knowledge at the heart of everything we do. A community that offers support and guidance to everyone affected by mitochondrial disease, helping them to find hope along a journey that can be extremely difficult to navigate alone.

Donate today

Donate through JustGiving to help The Lily Foundation fight mitochondrial disease and find hope for patients and their families.