The Lily Foundation logo featuring a butterfly, hearts and an 'x' for a kiss

Fighting mito,
finding hope.

Mum crouched down smiling and  cuddling her child in a lily Tshirt, whilst another child in a pushchair is smiling Mum crouched down smiling and  cuddling her child in a lily Tshirt, whilst another child in a pushchair is smiling

Are you affected by mito?

If you’ve received a mitochondrial disease diagnosis, The Lily Foundation charity can offer emotional support and practical advice as you navigate your illness.

Have you, or has someone you know, received a mitochondrial disease diagnosis? If so, The Lily Foundation are here for you.

We understand that right now you’re probably feeling upset and frightened, but also very lonely. Chances are you’d never heard of mito until you received your diagnosis, and you almost certainly won’t know anyone else in the same situation.

Perhaps you have lots of questions, anxieties about what the future might hold, or need help managing all the difficult changes in your life. The good news is you don’t have to face these challenges alone.

The Lily Foundation are here to help, providing ongoing support to everyone affected by mitochondrial disease, whether you’re a patient, a parent, a sibling or a friend.

We’re also here to support medical professionals who may have patients affected by mitochondrial disease. We’re here to provide you with the information you need to help you care for patients with a confirmed diagnosis and those you suspect may have mito.

Need someone to talk to?

We provide a free counselling service for patients affected by mitochondrial disease in conjunction with Rareminds. Find out more.

Our vision is for a world in which every mitochondrial disease patient has a voice and access to treatment, support to improve their life and, ultimately, a cure.

Together we’re navigating the complexities of mitochondrial disease: today raising awareness of mito across the globe; tomorrow unlocking the cure through pioneering research; forever supporting the mito community and empowering everyone to make a difference.

Please take the time to browse our website and learn more about our charity and the work we do.

Whoever you are, welcome to our community.

You’re not alone x

Fighting mito, finding hope