Are you affected by mito?

Have you, or has someone you know, received a mitochondrial disease diagnosis? If so, The Lily Foundation are here for you.

We understand that right now you’re probably feeling upset and frightened, but also very lonely. Chances are you’d never heard of mitochondrial disease until you received your diagnosis, and you almost certainly won’t know anyone else in the same situation.

Is mitochondrial disease curable? Can I live a normal life with mitochondrial disease? What is the main cause of mitochondrial disease? No doubt you have lots of questions like these, anxieties about what the future might hold, and may even need help managing all the difficult changes in your life. The good news is you don’t have to face these uncertainties and challenges alone.

The Lily Foundation are here to help, providing ongoing support to everyone affected by mitochondrial disease, whether you’re a patient, a parent, a sibling or a friend.

We’re also here to support medical professionals who may have patients affected by mitochondrial disease. We’re here to provide you with the information you need to help you care for patients with a confirmed diagnosis and those you suspect may have a mitochondrial disorder.