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Fighting mito,
finding hope.

Lab technician wearing blue gloves, using a pipette to put blue or yellow liquid into a rack of test tubes Lab technician wearing blue gloves, using a pipette to put blue or yellow liquid into a rack of test tubes

NHS Rare Mitochondrial Disorders Service

The Lily Foundation have teamed up with the NHS Highly Specialised Services (HSS) for Rare Mitochondrial Disorders to bring you a website for patients and professionals.

https://mitochondrialdisease.nhs.uk/

This website provides the following information:

  • who the HSS are
  • services they provide
  • how patients and other healthcare professionals can access the HSS
  • mitochondrial disorders information for patients and families
  • mitochondrial disorders information for healthcare professionals
  • information on forthcoming events.

The NHS Highly Specialised Service for Rare Mitochondrial Disorders provides a comprehensive, high quality service for this rare group of disorders, with centres in London, Newcastle and Oxford.

Each centre has an international reputation for clinical care and research into mitochondrial disorders, and has an expert team of doctors and other healthcare professionals.

You can find out lots more detailed information about mitochondrial disease and its symptoms on this site, as well as the different syndromes within mitochondrial diseases and further details about the inheritance of mito and reproductive options currently available.

Have your say

Sign up today to our UK Mito Patient Registry and make your experiences count in the search for effective treatments and a cure for mito.