Fighting mito,
finding hope.
If you’re affected by mitochondrial disease, our grant scheme could help make your wish come true.
The Lily Wish Fund is a grant scheme run by The Lily Foundation. Since 2007 it’s helped people with mitochondrial disease, their families and carers pay for things that improve daily life but they they couldn’t otherwise afford, such as an adapted trike or garden, or a short break.
There are many ways to make life easier and more enjoyable for families affected by mitochondrial disease, but they often come at a price. That’s why the Lily Wish Fund exists.
Every application is considered individually. Applicants may apply for one of two grant options:
Individuals who have a formal diagnosis of mitochondrial disease, or a parent/carer of an individual diagnosed with mitochondrial disease, can apply. Families who have lost a loved one to the disease can apply for a short break. If you’re unsure whether your idea qualifies, please email us and ask.
We’ve already helped make wishes come true for many people affected by mitochondrial disease.
“I’m so grateful, I want to say thank you. Thank you to everyone at Lily and to everyone involved for helping me through the process of banking my voice. I will now always have a voice and that means so much to me”
– Bal, mitochondrial disease patient
Families like Mark, Ruth and Ivy, whose new buggy opened up almost unlimited opportunities; And Jason, whose mitochondrial disease diagnosis meant he was in danger of losing his hearing, and his livelihood as a musician, before we stepped in to help.
“The difference is incredible. With the in-ear monitors, I’m in complete control of what sound goes into my ears. Overall my hearing is doing a lot better, and that’s a massive step towards me being able to do this for a long time, so I’m really grateful.”
– Jason, mitochondrial disease patient
Yes. As well as the Wish Fund, The Lily Foundation offers a crisis fund for individuals and families who need emergency money. To enquire about this, please email [email protected].
What is the Lily Wish Fund? It’s a grant scheme from The Lily Foundation, running since 2007, that gives people affected by mitochondrial disease and their families access to something they might not normally be able to afford to improve their lives.
What is mitochondrial disease? Mitochondrial disease (often called mito) is a group of conditions that can affect people of any age. Our What is mitochondrial disease page explains the science.
Can I apply if I’ve lost a loved one to mito? Yes, families dealing with the loss of someone to mitochondrial disease can ask about a break or change of scenery.
Can I apply more than once? Yes, but if you’ve had a wish granted within the last year, that will be taken into account.
How do I apply for the Wish Fund or a crisis grant? Email Claire ([email protected]) for a Wish Fund application form, or Liz ([email protected]) for the crisis fund.
If you or your loved one is affected by mitochondrial disease, what will you wish for? Get in touch with Claire and tell us.
N.B. The Lily Wish Fund is discretionary, and all decisions made by the Committee are final.
If you have any problems please email [email protected]
