Fighting mito,
finding hope.
A safe, relaxed and informal occasion where adult mitochondrial disease patients can meet up and spend time together.
In 2024 The Lily Foundation began offering a support weekend specifically for adults affected by mitochondrial disease. Our Family Support Weekend and Young Adult Weekend have been staples in the Lily calendar for a number of years now, but feedback from the adult mito community told us that they were desperate for an event of their own, so we were happy to oblige!
The weekend offers a safe, relaxed environment for adult patients, along with their carers, to meet others in similar situations, share experiences of their illness and create lasting friendships.
From pottery and clay shooting to wine tasting and head massage, there’s a strong focus on wellbeing throughout the weekend, alongside a healthy helping of fun. Attendees also have the chance to meet medical professionals, ask questions about mitochondrial disease and get updates on developments in mitochondrial research.
Living with a mitochondrial disease diagnosis can be a frightening and isolating experience. Our support weekend brings people together so they no longer have to face their condition alone.
Mito patient Lisa said of the weekend: “It was truly amazing and has made such a difference to me to meet with others and share experiences. Since my diagnosis seven years ago I have never been able to accept this disease and I just keep pushing myself to ignore it... With support from Lily and my ‘new’ friends, I’ll be ok. From the heart, thank you all.”
For more information about the weekend please email [email protected].
If you have any problems please email [email protected]
