The Lily Foundation logo featuring a butterfly, hearts and an 'x' for a kiss

Fighting mito,
finding hope.

We’re here to help

Being diagnosed with mitochondrial disease can be not only a frightening and upsetting time, but it can also be very lonely. Because mito is so rare, sometimes friends and family just don’t understand, so it’s hard to find people who are in the same situation to talk to, to share hopes and fears with, and find support.

The good news is you don’t have to face these challenges alone.

Talking to someone who understands your situation can bring a sense of relief and clarity, and help you to plan a way forward. All conversations are private and confidential, and we respect your right to decide what's best for you. To get in touch call Liz on 0300 400 1234 or 07947 257247, or email [email protected].

You can also contact us through our social media channels. We monitor these closely and try to answer queries as quickly as possible. Many members of the team at Lily have direct experience of mitochondrial disease which makes a huge difference to the families we support.

Here are some of the other ways we provide ongoing support to anyone in the UK affected by mitochondrial disease.

Wish Fund

If you suffer from mitochondrial disease, our grant scheme could help make your wish come true.


Understand what financial support you might be entitled to if you have a mitochondrial disease diagnosis.