The Lily Foundation logo featuring a butterfly, hearts and an 'x' for a kiss

Fighting mito,
finding hope.

Social media

Most of us are active on social media these days, so it made sense for us to extend that to our mito family.

We have a private Facebook group for families whose children are affected by the disease, and another for affected adults. Each group provides a place for people to connect with others who understand their situation, share information and experiences, and hopefully make some lasting friendships.

Stay in touch

Sign up to our newsletter and we’ll keep you up to date with the latest research and clinical trials, plus news about Lily events, campaigns, personal stories and more. Or join us on Facebook, X, Instagram and LinkedIn.

We post regularly within these groups, so they’re also a great way for patients to keep up to date with events, research developments and any other important news that’s of relevance to the mito community.

And we’re very active on our wider Facebook page and other social channels such as X, Instagram and LinkedIn too, connecting mito patients with all our supporters and keeping everyone in the loop about what’s happening in the world of mito.