The Lily Foundation logo featuring a butterfly, hearts and an 'x' for a kiss

Fighting mito,
finding hope.


There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.

From personal stories about families affected by the disease to the latest research projects and plenty more, why not sign up to our newsletters, and follow us on social media, to ensure you never miss a thing.

Filter by category:

All Articles Support Research Events Personal stories Awareness Fundraising Fitness

Research 21 April 2023

We’re making mito a global topic

We know all too well how tough it is to get a mitochondrial disease diagnosis here in the UK, even with our wonderful NHS and the support The Lily Foundation offers. So imagine suffering from mito and living somewhere like Zambia, Brazil, India or Turkey – it must be almost impossible to get answers.

Support 17 April 2023

Celebrating 15 years of… patient advocacy

One of the reasons The Lily Foundation exists is to help give a voice to mito patients and their families, to enable them to have a say in the services and support available. A lot has changed in the last 15 years, and we’re proud of the progress we’ve made, but we don’t intend to rest on our laurels, because understanding mitochondrial disease is the key to unlocking effective treatments and that eventual cure.

Support 14 April 2023

Your money matters for Lily’s newest recruit

As part of our mission to support families affected by mitochondrial disease, we believe that should cover financial support too. So we’re delighted to welcome our new Benefits Advisor, Chrissy, to the Lily team. We caught up with her to see how she’s planning to help mito patients and their families navigate the tricky topic of financial welfare.