There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.
From personal stories about families affected by the disease to the latest research projects and plenty more, why not sign up to our newsletters, and follow us on social media, to ensure you never miss a thing.
Filter by category:
All Articles Support Research Events Personal stories Awareness Fundraising Fitness
Support
Events
20 October 2023
With Newcastle’s last Patient Information Day having taken place back in 2019, it was clear by the attendance this year that mitochondrial disease patients were delighted to have this social engagement back on the calendar. As were we, since it offers us a great chance to raise awareness amongst patients about our support services.
Support
Personal stories
9 October 2023
Losing a baby is one of the hardest things any parent will ever go through. To mark the occasion of Baby Loss Awareness Week from 9th-15th October, we spoke with Beth about losing her baby son to mitochondrial disease and how she still carries her grief with her over 13 years later.
Support
Events
3 October 2023
What better way to feel part of a community than by gathering together for a weekend of shared physical challenges and emotional support in a stunning location. That’s exactly what motivated 18 young adult mito patients to head to the beautiful Lake District for the Lily Young Adult Weekend recently.
Awareness
27 September 2023
A huge thank you to everyone who got involved in events before and during World Mitochondrial Disease Week earlier this month, from Lily families and supporters to doctors and researchers.
Personal stories
26 September 2023
Last week, BBC Points West ran a story about team member Sarah, who came across The Lily Foundation back in 2018 after losing her two daughters to mitochondrial disease.
Awareness
24 September 2023
Everyone at Lily HQ was delighted to hear the exciting news that our founder and CEO, Liz, was honoured with a National Lottery Local Health Hero Award at The Sun’s recent Who Cares Wins awards.
Personal stories
Fundraising
18 September 2023
Every summer the organisers of the Royal Parks Half Marathon launch their Inspire campaign, sponsored by Royal Bank of Canada, to seek out five inspirational runners, and this year one of their winners is Lily supporter Reanna!
Research
12 September 2023
Bert Smeets, Professor of Clinical Genomics at Maastricht University, is working on a new trial using stem cells to treat muscle damage in mitochondrial myopathy patients. We spoke with him about how this technology could help in the care of mitochondrial disease patients.
Research
12 September 2023
Everyone at The Lily Foundation was delighted to hear the recent news that the UK is to rejoin Horizon Europe, the EU’s key funding programme for research and innovation. The scheme provides access to a huge pot of money that UK-based scientists and institutions will be able to apply for again, so naturally brings hope of further research into treatments for mitochondrial diseases.
If you have any problems please email [email protected]
