There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.
From personal stories about families affected by the disease to the latest research projects and plenty more, why not sign up to our newsletters, and follow us on social media, to ensure you never miss a thing.
Filter by category:
All Articles Support Research Events Personal stories Awareness Fundraising Fitness
Support
18 January 2024
Living with a rare condition like mitochondrial disease can bring as many psychological challenges as physical ones. That’s why we’re delighted to be teaming up with Rareminds to offer a new free, confidential counselling service to individuals and families who are affected by mito.
Personal stories
Fundraising
4 January 2024
Waistband a bit tight after all the festive indulgence? Why not sign up for a Lily event like our Operations Manager Claire, who’s taking on her biggest fitness challenge yet in 2024 – the London Marathon.
Awareness
22 December 2023
What a year it’s been! As the curtain comes down on 2023, our CEO and Founder, Liz Curtis, takes a moment to reflect on everything that’s happened over the last 12 months, and looks forward to plenty more to come in 2024.
Events
Fundraising
21 December 2023
Tickets are selling fast for next year’s Comedy Night, which got us wondering what it is about this event that makes it so successful. Over the years we’ve seen sell-out show after sell-out show featuring star-studded line ups including Tim Vine, Josh Widdicombe, Alan Davies, Joe Pasquale, Shaun Walsh, Sarah Millican, Marcus Brigstock, Katherine Ryan and many more.
Support
2 December 2023
To mark National Grief Awareness Week (2nd-8th December) we spoke with Consultant Clinical Neuropsychologist Dr Ben Marram about loss and how to deal with it. Because we will all, within the mito community and without, experience grief and loss of some kind during our lives.
Research
9 November 2023
Back in December 2019, we were delighted to announce the latest addition to our Lily-funded mitochondrial disease research team, PhD student Yasmin Tang. Nearly four years on, not only has Yasmin completed her PhD but she’s been awarded the Faculty Doctoral Thesis Prize for her studies. Proof that we only back the best here at The Lily Foundation!
Research
Awareness
7 November 2023
Raising awareness about mitochondrial disease, and about The Lily Foundation, is always top of our agenda so we were delighted to accept an invitation to talk about our work at the Annual Cambridge Paediatric Mitochondrial Meeting earlier in November.
Personal stories
6 November 2023
There are nearly one million trustees in the UK, and Claire Gore is one of The Lily Foundation’s. We spoke with her to mark the occasion of Trustees Week (6th-10th November) about why she joined our board and what she gets out of the role.
Research
26 October 2023
Research is the key to finding treatments and an eventual cure for mitochondrial disease, and we believe the real experts are the people living with the disease. That’s why we’re launching a new Expert Patient Input Committee – in short, EPIC: a committee made up entirely of people affected by mito who are willing to share their experiences to help shape research, clinical care and treatments.
If you have any problems please email [email protected]
