News - The Lily Foundation
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Fighting mito,
finding hope.


There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.

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29 February 2024

Delving deeper into the diagnostic journey

What’s it like getting a diagnosis for, and living with, a disease like mitochondrial disease that few people, even within the medical community, have heard of? These are questions that Dr Stella Johnson from Cardiff University focused on in her recent Masters, and when she needed some help with her study, she knew just where to turn.

22 February 2024

Research review: Vestibular dysfunction

Back in 2020 we funded a research study aiming to develop a framework to help identify the cause of balance problems in people with mitochondrial disease. That study is now complete, and the questions in the framework have been shown to accurately rule in or out vestibular causes of imbalance and dizziness in mito patients so that they can access appropriate treatment.