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Fighting mito,
finding hope.


There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.

From personal stories about families affected by the disease to the latest research projects and plenty more, why not sign up to our newsletters, and follow us on social media, to ensure you never miss a thing.

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Support 30 March 2023

Celebrating 15 years of... Lily friendship

Being diagnosed with mitochondrial disease can be not only a frightening and upsetting time, but it can also be very lonely. Because mito is so rare, sometimes friends and family just don't understand, so it’s hard to find people who are in the same situation to talk to, to share hopes and fears with, and find support. And that’s why The Lily Foundation have been bringing people together for the last 15 years.

Personal stories 30 March 2023

No one’s voice should go unheard

What would you do if you knew that one day you’d no longer be able to speak, talk to your family or chat with your friends? That’s the harsh reality for mito patient Bal, whose voice is rapidly deteriorating, and who’s ready to spread the word about the positive effects of voice banking.

Research 21 March 2023

How our latest partnership is driving research forward

The Lily Foundation is at the forefront of seeking treatments, and eventually a cure, for mitochondrial disease, and collaboration with others is essential in driving that research forward. One of our most exciting ongoing partnerships is with The PolG Foundation, so we spoke with the charity’s co-founder, Julie, to understand how the foundation was born and how their relationship with us has blossomed.

Research 13 March 2023

Research focus: TRANSFORM study update

The Lily Foundation has been funding a study into a potentially life-changing new treatment for mitochondrial patients affected by epileptic seizures. Here to update us on progress is Katrin Bangel, part of the research team at the Wellcome Centre for Mitochondrial Research in Newcastle.

Support 27 February 2023

Lily Wish Fund

For 15 years now we’ve been providing much-needed support to sufferers of mitochondrial disease, their families and carers. There are lots of ways to make the lives of affected families easier and more enjoyable, but they can come at a price. And that’s why we’re delighted to launch the Lily Wish Fund.