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Fighting mito,
finding hope.


There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.

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Events 21 December 2023

Still funny, even after 15 years

Tickets are selling fast for next year’s Comedy Night, which got us wondering what it is about this event that makes it so successful. Over the years we’ve seen sell-out show after sell-out show featuring star-studded line ups including Tim Vine, Josh Widdicombe, Alan Davies, Joe Pasquale, Shaun Walsh, Sarah Millican, Marcus Brigstock, Katherine Ryan and many more.

Support 2 December 2023

When we think there are no words, let’s start talking

As many of us come together with family and friends at Christmas, it’s a time to reflect on those we love as well as those we’ve lost. To mark National Grief Awareness Week (2nd-8th December) we spoke with Consultant Clinical Neuropsychologist Dr Ben Marram about loss and how to deal with it. Because we will all, within the mito community and without, experience grief and loss of some kind during our lives.

Research 26 October 2023

Something EPIC has arrived

Research is the key to finding treatments and an eventual cure for mito, and we believe the real experts are the people living with the disease. That’s why we’re launching a new Expert Patient Input Committee – in short, EPIC: a committee made up entirely of people affected by mito who are willing to share their experiences to help shape research, clinical care and treatments.

Events 20 October 2023

Newcastle Patient Information Day 2023

With Newcastle’s last Patient Information Day having taken place back in 2019, it was clear by the attendance this year that mitochondrial disease patients were delighted to have this social engagement back on the calendar. As were we, since it offers us a great chance to raise awareness amongst patients about our support services.