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Stay connected with the mitochondrial disease community

Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

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Fitness
9 June 2025

10 running tips for beginners

Just signed up for a charity run and not sure where to begin? Whether you’re new to running or returning after a break, getting going can feel overwhelming. But don’t worry – with the right approach, you’ll be hitting your stride in no time. Check out our top 10 running tips for beginners to help you train smart, stay motivated and enjoy every step of your challenge.

Research
30 May 2025

FAQs about the LifeArc Centre for Rare Mitochondrial Diseases

You might have heard us talking about the new LifeArc Centre for Rare Mitochondrial Diseases a lot recently – and for good reason. But what exactly is the centre, and what will this major milestone really mean for patients and families in the search for effective treatments? We’ve answered some of the questions you might have to help explain why it matters so much.