Caring for someone with a rare condition like mitochondrial disease often comes with additional stress, uncertainty and emotional weight – especially when navigating complex health needs, medical appointments or even simply managing day-to-day life. That’s why this week, we’re turning our focus to kindness – specifically, self-kindness.
Self-care is not a luxury. For carers, it’s a lifeline. Looking after your own wellbeing helps ensure that you’re able to continue supporting the person you care for without becoming overwhelmed or burned out. Here are 10 simple but powerful acts of kindness you can show yourself – starting today.
1. Stick to a supportive routine
Establishing a consistent routine, even a loose one, can help ground your day and provide structure amidst unpredictability. Include time for you, not just tasks for others.
2. Nourish your body
Don’t skip meals. Eating regularly and as nutritiously as you can fuels your energy and focus – both essential for caregiving.
3. Stay hydrated
It may sound simple, but drinking enough water is a powerful form of self-respect. Keep a bottle nearby and set reminders if needed.
4. Move when you can
Even a short walk around the block or stretching indoors can improve your mood and reduce stress. Movement doesn’t need to be intense to be effective.
5. Stay connected
Don’t let isolation take over. Whether it’s a quick message, a call or connecting through online groups, human contact matters.
6. Be honest
Share how you’re feeling. If others don’t know what you’re dealing with, they can’t support you. Vulnerability opens the door to empathy and help.
7. Connect with other carers
Carer support groups – online or in-person – offer a space to be understood, share advice and feel less alone. Peer support is powerful.
8. Reach out for professional help
If you’re struggling emotionally or mentally, speak to your GP or contact a counselling service. Asking for help is a sign of strength, not weakness.
9. Refresh your space
Changing your environment, even slightly, can help lift your mood. Rearranging furniture or stepping into a different room for a cup of tea can bring a sense of renewal.
10. Prioritise sleep
Caring tasks don’t end at night, but try not to sacrifice your sleep to ‘catch up’ on everything else. Rest is essential – for both your body and your ability to care well.
You’re not alone
At The Lily Foundation, we know the caring role is filled with both love and hardship. Remember: connection matters more than perfection. Be gentle with yourself. You’re doing more than enough.
If you share caregiving duties with someone else, try to communicate, work as a team and give each other grace. We all cope in different ways – and that’s okay.
You’re part of a strong and compassionate community. We’re here to support you – not just this week but every week.