Fighting mito,
finding hope.
Thanks to mitochondrial donation, families are seeing hope become reality.
Mitochondrial disease, or ‘mito’, is a rare, complex and difficult-to-diagnose genetic disorder that affects people in very different ways. It can affect any organ at any age, and often occurs in babies and young children. There is currently no cure, but we’re working hard to change that, and are the largest charitable funder of mitochondrial research in Europe.
Mitochondrial dysfunction has been identified as a key factor in other more common diseases including dementia, Parkinson's disease, epilepsy and cancer. The research we fund and support not only holds promise for individuals with mitochondrial disorders, but has the potential to benefit millions of others too.
That’s why, despite being a little-known disease, mitochondrial disease could be the key to some of the most important medical breakthroughs of our time.
Donate through JustGiving to help The Lily Foundation fight mitochondrial disease and find hope for patients and their families.
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since 2007
Families
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Donated
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At just 16 years old, Elinor faced challenges most of us will never fully understand. Living with mitochondrial disease – a rare, progressive and currently incurable condition – she experienced pain, exhaustion and uncertainty every day.
Despite her diagnosis, Elinor was full of spirit, strength and insight. She was determined to live her life with courage, and to help others understand what it truly means to live with mito.
This is her story.
Help us to support patients like Elinor, raise awareness of mitochondrial disease and fund research into treatments and a cure.
Help us to fight mito and find hope for everyone affected.
We’re celebrating another huge step forward for the mito community. For the first time ever, a treatment for one form of mitochondrial disease has been approved for use on the NHS in England. Idebenone is now available to help people living with LHON, marking a historic breakthrough and a huge leap forward in care and hope!
We’re delighted to share the news of a significant step forward in the fight against mitochondrial disease: research just published confirms the early success of mitochondrial donation IVF, a groundbreaking fertility technique designed to reduce the transmission of certain types of mito from mother to child.
Last weekend, more than 50 families affected by mitochondrial disease came together in Warwickshire for The Lily Foundation’s cherished Family Weekend. Over the course of 48 emotional and uplifting hours, families found comfort, connection and strength in one another. Here’s a glimpse into what made it so special.
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