There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.
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Events 25 April 2024
A huge shoutout to all the incredible Lily runners who completed the London Marathon last weekend, raising an incredible £127,000 to help fight mitochondrial disease. This year, the world’s greatest marathon saw a record field of over 50,000 participants, and 44 of them wore Lily colours.
Research 23 April 2024
The Lily Foundation are thrilled to announce our pivotal role in the creation of a new cutting-edge, multi-site centre for mitochondrial disease research in partnership with LifeArc and Muscular Dystrophy UK (MDUK).
Personal stories 23 April 2024
Often taking on a charity challenge means attempting a one-off event such as running a race or climbing a mountain. But once wasn’t enough for Lily supporter Darren, who took on the incredible feat of running a half marathon every day for a month.
Research 18 April 2024
One of the most pioneering scientists in mitochondrial research right now is Antonella Spinazzola, Professor of Neuroscience and Mitochondrial Medicine at UCL Queen Square. Her latest paper has just been published and the work, supported by The Lily Foundation, contains promising progress in the search for mito treatments.
Research 16 April 2024
Last month, Alison and Maria from the Lily team attended the 8th Mitochondrial Medicine conference, seizing the opportunity to raise awareness of our work and in particular the importance of patient organisations like The Lily Foundation in mitochondrial research.
Events 27 March 2024
Once upon a time, there was a beautiful ball held in a fabulous hotel for a group of very special people. That time was last Saturday, and that occasion was our annual charity ball, the most anticipated event in the Lily calendar.
Research 4 March 2024
Time is the key to so many discoveries in science, technology, engineering and maths, so it makes a fitting theme for this year’s British Science Week (8th-17th March). We hear from Renata, a bioinformatician who’s recently joined our new Precision Diagnostics project, about how time is playing a key part in both the diagnosis of mitochondrial diseases and the evolution of the technology involved.
Research 29 February 2024
Did you know there are around three and a half million people in the UK living with a rare disease? But what’s it like getting a diagnosis for, and living with, a disease that few people, even within the medical community, have heard of? These are questions that Dr Stella Johnson from Cardiff University focused on in her recent Masters, and when she needed some help with her study, she knew just where to turn.
Research 22 February 2024
In anticipation of Rare Disease Day, we spoke to our newest research recruit, Jamie, about what first inspired her to work in the field of rare diseases, and why it’s so important for us to keep spreading the word about mitochondrial disease.
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