There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.
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Personal stories 30 March 2023
What would you do if you knew that one day you’d no longer be able to speak, talk to your family or chat with your friends? That’s the harsh reality for mito patient Bal, whose voice is rapidly deteriorating, and who’s ready to spread the word about the positive effects of voice banking.
Research 21 March 2023
The Lily Foundation is at the forefront of seeking treatments, and eventually a cure, for mitochondrial disease, and collaboration with others is essential in driving that research forward. One of our most exciting ongoing partnerships is with The PolG Foundation, so we spoke with the charity’s co-founder, Julie, to understand how the foundation was born and how their relationship with us has blossomed.
Events 14 March 2023
We may have just had The Oscars but there was just as much glitz at The Lily Foundation's annual charity ball, which had its share of dazzling dresses, glamorous guests and moving speeches. But the real stars of the show were the young adults who stole everyone’s hearts with their poignant accounts of the reality of living with mitochondrial disease.
Research 13 March 2023
The Lily Foundation has been funding a study into a potentially life-changing new treatment for mitochondrial patients affected by epileptic seizures. Here to update us on progress is Katrin Bangel, part of the research team at the Wellcome Centre for Mitochondrial Research in Newcastle.
Support 10 March 2023
Last week saw the first in-person mito Patient Information Evening since the Covid pandemic, and it’s clear from the attendance – and distances travelled – that everyone was delighted to be able to come together in person once again.
Personal stories 8 March 2023
Fortunately, these days we’re surrounded by women setting incredible examples to us, balancing their careers with bringing up children alongside all the other demands of modern life. But what about when those children have special needs?
Support 27 February 2023
For 15 years now we’ve been providing much-needed support to sufferers of mitochondrial disease, their families and carers. There are lots of ways to make the lives of affected families easier and more enjoyable, but they can come at a price. And that’s why we’re delighted to launch the Lily Wish Fund.
Events 27 February 2023
What do you get when you cross several side-splitting stand-ups with a fantastic charity? A winning formula for the legendary Lily Comedy Night, of course!
Personal stories 13 February 2023
It’s Rare Disease Day on February 28th, so to shine a spotlight on the millions of people around the world living with a rare disease, we asked mito patient Amy to tell us what it’s like to be rare.
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