The Lily Foundation

The Lily Foundation was founded in Lily's memory, having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today.

What's Mitochondrial Disease?

Did you know every twenty minutes a child is born who will develop Mitochondrial Disease by the age of 16!? There is no cure for this disease which is for many debilitating and life limiting. We have created an animation to explain how important mitochondria are, and what happens when they go wrong. 

Our Mission

The Lily Foundation has three aims: To fund research to improve diagnosis and increase treatment options, and ultimately find a cure. To raise much needed awareness of these conditions both in the general population and the medical community. To support families affected by this condition.

You can make a difference

Have a look at The Lily Foundation events or challenge yourself and get involved. As supporters you are the ones that make the difference.

The following video was created for our 2016 Ball to show how our families have inspired The Lily Foundation and how The Lily Foundation through your support helps them and supports crutial research into better treatment and ultimatly a cure.

Wow ! What a day the London Marathon 2016 was - thank you to everyone - our runners, their supporters, our team , the pub and our physios - you all were part of something very special. A special mention to our fastest 3 runners, Ricky Power at 2:55, David Heard 3:27 and Roy Cousin 3:28 – amazing!. And to Dave, Lily's Dad who completed his 9th London Marathon in memory of his special little girl. I am , you are, we are The Lily Foundation

The Lily Foundation Snowdon Challenge 2016 – 4 Routes in 4 Days

We have lots of amazing people signing up for our snowdon challange! From the 20th-23rd May 2016 former Fulham full-back Les Strong and Lily Chairman Jonathan Pearce from BBC Match of the Day and a team of Lily supporters will be climbing Mount Snowdon,  four different routes on four different days. It's going to be an amazing challenge raising thousands of pounds to help us fight for hope. If you would like to join them for all or part of the challenge. You can find out more or donate here