The Lily Foundation

The Lily Foundation was founded in Lily's memory, having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today.

What's Mitochondrial Disease?

Did you know every twenty minutes a child is born who will develop Mitochondrial Disease by the age of 16!? There is no cure for this disease which is for many debilitating and life limiting. We have created an animation to explain how important mitochondria are, and what happens when they go wrong. 

Our Mission

The Lily Foundation has three aims: To fund research to improve diagnosis and increase treatment options, and ultimately find a cure. To raise much needed awareness of these conditions both in the general population and the medical community. To support families affected by this condition.

You can make a difference

Have a look at The Lily Foundation events or challenge yourself and get involved. As supporters you are the ones that make the difference.

The following video was created for our 2015 Ball to show how our families have inspired The Lily Foundation and how The Lily Foundation through your support helps them

It’s just 1 month till Jeans for Genes Day 2015. We are proud to be supporting this event and ask you to “ Don Your Denim” on the 18/9. Jeans for Genes and Genetic Disorder UK are generously supporting our Family Weekend 2015 bringing families from all over the UK together. Pop across and see how you can get involved.

Would you like to be a Lily Foundation Volunteer?

We are collecting information from people who would like to volunteer their time to give hope and answers to our families. As a small charity volunteers make such a massive difference to us. Simply follow the link below and complete our on-line questionnaire if you would like to get involved.
 - Thank you for joining the fight - Lily Volunteer Survey