The Lily Foundation
Lily Anna Merritt was a beautiful little girl and despite being given days to live, she graced this world with eight months of life. The Lily Foundation was built on Lily's strength and inspired by her fighting spirit. Although The Lily Foundation was founded in Lily's memory - it is not for Lily. It is to give hope, answers and support to the many other children and families that face the challenges of this disease today.
There is no cure or treatment for Mitochondrial Disease.
Our vision
Our vision is to change this. The Lily Foundation is committed to finding a cure for Mitochondrial Disease. We have a three point mission; fund research, train doctors and support families with sick children.
Recent research has shown that 1 in 200 healthy newborns are carriers of Mitochondrial Disease and are at risk of passing the disease onto their offspring.
Our Challenge
Our first challenge is to raise £400,000 to fund a gene testing programme that will use chip technology to speed up diagnosis and advance research into finding a cure.
