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The Lily Foundation
Lily Anna Merritt was a beautiful little girl and despite being given days to live, she graced this world with eight months of life. The Lily Foundation was built on Lily's strength and inspired by her fighting spirit. Although The Lily Foundation was founded in Lily's memory, it is not for Lily. It is to give hope, answers and support to the many other children and families that face the challenges of this disease today.
There is no cure or treatment for Mitochondrial Disease.
As we celebrate our 6th year, we are very proud to introduce our new animation.
This video was created to simply and visually explain how important Mitochondria are, and what happens when they go wrong.
This video will be used nationally to help educate and raise awareness of Mitochondrial Disease.... To watch the video click on the play icon...
Our vision is to change this. The Lily Foundation is committed to finding a cure for Mitochondrial Disease. We have a three point mission - fund research to improve diagnosis and treatment options, raise awareness of these conditions to they are more easily recognised, and support families with sick children.
Recent research has shown that 1 in 200 healthy newborns in the UK are born with genetic changes that can cause Mitochondrial Disease and are at risk of passing these changes onto their offspring.
Our first challenge was to raise funds for research that would improve speed and accuracy of diagnosis rates and ultimately find a cure. We are supporting a number of UK hospitals and research centres to strive towards achieving this goal.Tweet
LONDON MARATHON 2014
Huge congratulations to all our amazing runners and thank you to our loyal supporters and invaluable volunteers - we couldn't do it without you all! To see Lily's Dad Dave interviewed by Denise Lewis click [here]
Over £40k raised at Fight Night 2
Thank you to everyone of the 600 guests who attended Lily Fight Night 2. A great atmosphere, great fights and over £40,000 made on the night for our special Charity. Thank you.
Prof Doug Turnbull on BBC1s The One Show
Professor Doug Turnbull of Newcastle University raises awareness of Mitochondrial Replacement Therapy and the hope it provides to some affected families. From 6 mins 30 secs http://bbc.in/1gzbUeG
Photos from the Lily Ball and Fight Night 2 now available
Photos from these amazing events are now available at Sweetpea Photography There is no password, just go straight to the client gallery.
Big Charity Circus Ball - Thank you
What an amazing night. Thanks to everyone who came and made this one of the best Lily Ball's yet! We raised a huge £74,000 and we couldn't have done it without your support x Lily Video 2014
£2 a month appeal
£2 is less than the cost of half a pint of lager and is definitely less than a G&T! If all our supporters could spare £2/month you would be making a real difference. Click here to help!
Government release draft regulations for Mitochondrial Replacement Therapy
We are delighted that the Government have now released draft regulations on Mitochondrial Replacement Therapy - a new IVF treatment which would prevent some forms of Mitochondrial Disease being passed from mother to child.
Lily on BBC Radio 4
Lily's Alison Maguire raises awareness of Mitochondrial Disease and tells how Mitochondrial Replacement Therapy could help prevent disease in some affected families. From 16m10s - http://www.bbc.co.uk/radio/player/b03vtcwj
Sponsor the Lily Team
There are many people doing amazing challenges to raise money for our charity. Click here and you can sponsor anyone who has an online sponsorship page.