The Lily Foundation
Lily Anna Merritt was a beautiful little girl and despite being given days to live, she graced this world with eight months of life. The Lily Foundation was built on Lily's strength and inspired by her fighting spirit. Although The Lily Foundation was founded in Lily's memory - it is not for Lily. It is to give hope, answers and support to the many other children and families that face the challenges of this disease today.
There is no cure or treatment for Mitochondrial Disease.
Here is the story of The Lily Foundation so far.... To play click on the icon in the middle of the picture
Our vision
Our vision is to change this. The Lily Foundation is committed to finding a cure for Mitochondrial Disease. We have a three point mission; fund research, train doctors and support families with sick children.
Recent research has shown that 1 in 200 healthy newborns are carriers of Mitochondrial Disease and are at risk of passing the disease onto their offspring.
Our Challenge
Our first challenge is to raise £400,000 to fund a gene testing programme that will use chip technology to speed up diagnosis and advance research into finding a cure.
Help us to make a difference. Have a look at The Lily Foundation events or challenge yourself and get involved. There may be something that might just interest you!
Latest News
2010 - £2 a month appeal
We launched our £2 a month appeal at our annual ball in March 2010. We have had a great response so far so please, if you can, subscribe to our £2 a month appeal - it really does help to make a difference. Click here to download a standing order form.
Check out our Forth Coming Events
Thursday 23rd September - The Lily Foundation Surrey Golf Day at Silvermere Golf Club
Tuesday 2nd November - The Supper Club Experience at the Supper Club Notting Hill
Monday 8th November - Italian Night at Bagattis. Please book directly with Bagattis by calling 0208 686 9649.
Monday 24th January 2011 - Comedy Night at The Comedy Store London
Saturday 12th March 2011 - The Lily Foundation Annual Ball at The Park Plaza Riverbank Hotel
For further details of these events click here
Charity of the Year 2010 - 2011
The Lily Foundation are delighted to have been chosen as the Official Charity of the Year for following companies:
IT Talent - an IT recruitment firm with offices around the country
National Friendly - a mutual providing health and financial security for members up and down the country
Doyle Clayton Solicitors - a law firm with offices around the country
Challenges
Dan Maiden and friends are taking on the Lands End to John O'Groats Challenge, which starts on September 5th and should take them 20 days to complete, in memory of Florence, Dan's daughter and to raise money for The Lily Foundation. All the best guys and thank you. To sponsor Dan click on his name.
Paul Lewis and Dan Brasier completed the London Triathlon earlier this moth with times of 1hr 33mins and 1hr 24mins respectively, and they are looking forward to taking on more challenges. Well done guys and many for choosing to support The Lily Foundation.
Climbing Kilimanjaro!
Congratulations Chetana, Anne and Karen who are now back from climbing to the top of Kilimanjaro. Click here to see the Lily flag waving! Well done girls and thank you so much.
Squibbs Demolition and Chase Bureau are also joining forces in September to climb Mount Kilimanjaro in aid of the Lily Foundation. To sponsor this team please send a cheque to us made payable to 'Climb for Lily'.
London BUPA 10000
We have guaranteed places in the London BUPA 10000 May 30th 2011
Click here for details
adidas Silverstone Half Marathon
We have guaranteed places for the adidas Silverstone Half Marathon in March 2011. Click here for further details.
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