The Lily Foundation

The Lily Foundation was founded in Lily's memory, having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today.

What's Mitochondrial Disease?

Did you know every twenty minutes a child is born who will develop Mitochondrial Disease by the age of 16!? There is no cure for this disease which is for many debilitating and life limiting. We have created an animation to explain how important mitochondria are, and what happens when they go wrong. 

Our Mission

The Lily Foundation has three aims: To fund research to improve diagnosis and increase treatment options, and ultimately find a cure. To raise much needed awareness of these conditions both in the general population and the medical community. To support families affected by this condition.

You can make a difference

Have a look at The Lily Foundation events or challenge yourself and get involved. As supporters you are the ones that make the difference.

The following video was created for our 2016 Ball to show how our families have inspired us and how we, through your support can be there for them and fund crucial research into better treatment and ultimately a cure.

We want to start the week with a massive congratulations to Mark Penfold  who finished his epic 500 mile walk on Saturday the 18th June for our charity inspired by his grandson Frankie. He has raised £55k so far with the help of his incredible  supporters and a generous donation of  £25k from his employer The Royal Mail! Thank you so much Mark for everything you have done to help us find a cure and raise awareness of Mitochondrial Disease. We know everyone has enjoyed following you every step of the way.

Congratulations Team Lily Snowdon 4 Routes in 4 Days

Amazing, incredible, superstars! All words to describe the 42 people who took on Snowdon at the weekend for our charity. Many climbed it 4 times! Our oldest climber was in his 70s. It was such an adventure where friendships were formed and such amazing awareness was raised. Their fundraising total is at over £24k. Thank you so much to Les Strong for leading the way, The Dancor Group for their sponsorship and logistical support and to everyone who climbed - you did something amazing - you have given hope.