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The Lily Foundation

Lily Anna Merritt was a beautiful little girl and despite being given days to live, she graced this world with eight months of life. The Lily Foundation was built on Lily's strength and inspired by her fighting spirit. Although The Lily Foundation was founded in Lily's memory - it is not for Lily. It is to give hope, answers and support to the many other children and families that face the challenges of this disease today.

There is no cure or treatment for Mitochondrial Disease.

Our vision

Our vision is to change this. The Lily Foundation is committed to finding a cure for Mitochondrial Disease. We have a three point mission; fund research, train doctors and support families with sick children.

Recent research has shown that 1 in 200 healthy newborns are carriers of Mitochondrial Disease and are at risk of passing the disease onto their offspring.

Our Challenge

Our first challenge is to raise £400,000 to fund a gene testing programme that will use chip technology to speed up diagnosis and advance research into finding a cure.

Help us to make a difference. Have a look at The Lily Foundation events or challenge yourself and get involved. There may be something that might just interest you!

Latest News

The 3rd Annual Ball

Tickets are selling fast for our annual ball, for details on tickets click here. This years auction is outstanding with money can't buy items up for grabs. We have the opportunity to go and watch England football team train and ...

London BUPA 10000

We have guaranteed places in the London BUPA 10000 May 24th. Click here for details

adidas Silverstone Half Marathon

We have 1 guaranteed places left in the adidas Silverstone Half Marathon on March 14th. For details click here

Cheque presentation from Lloyd's Charities Trust

Susie Kyd employee of Lloyd's and Liz from The Lily Foundation were presented with a cheque for £1000 from Lloyd's Charities Trust for Susie's fundraising efforts this year for The Lily Foundation. To read more click here

Check out our New Events

Saturday 13th March 2010 - Charity Ball tickets now on sale via our brand new on-line shop.

Thursday 14th May 2010 - The Lily Foundation Midlands Golf Day

For further details of these events click here

Sponsor The Lily Team

To sponsor our runners, hikers and bike riders click here