The Lily Foundation

Lily Anna Merritt was a beautiful little girl and despite being given days to live, she graced this world with eight months of life. The Lily Foundation was built on Lily's strength and inspired by her fighting spirit.  Although The Lily Foundation was founded in Lily's memory, it is not for Lily. It is to give hope, answers and support to the many other children and families that face the challenges of this disease today.

There is no cure or treatment for Mitochondrial Disease.

Caroline and Dave Camis feature in The 2011 Lily Foundation Video Presentation. They tell their story of living with a child suffering from Mitochondrial Disease and their journey with Charlie so far...To watch the video click on the play icon...

Our Vision

Our vision is to change this. The Lily Foundation is committed to finding a cure for Mitochondrial Disease. We have a three point mission- fund research, train doctors and support families with sick children.

Recent research has shown that 1 in 200 healthy newborns are carriers of Mitochondrial Disease and are at risk of passing the disease onto their offspring.

Our Challenge

Our first challenge is to raise £400,000 to fund a gene testing programme that will use chip technology to speed up diagnosis and advance research into finding a cure.

Help us to make a difference. Have a look at The Lily Foundation events or challenge yourself and get involved. There may be something that might just interest you!

Latest News

Congratulations to our 2012 Marathon Team

Congratulations to The Lily Team who completed the London Marathon on Sunday.  You are all amazing and inspirational. Well done! It isnot too late to sponsor any of our runners - you can do so  HERE.

Thank you!

Thank you to everyone who attended the ball on Saturday 24th March.  We raised a magnificent £57,000. Thank you too to our headline sponsors for the evening, IT Talent Solutions and our hosts Jason Manford and Jonathan Pearce. Read more and view the pictures from the evening here..

Sponsor the Lily Team

There are many people doing amazing challenges to raise money for our charity.  Click here and you can sponsor anyone who has an online sponsorship page.

£2 a month appeal

We launched our £2 a month appeal at our annual ball in March 2010.  We have had a great response so far so please, if you can, subscribe to our £2 a month appeal - it really does help to make a difference. Click here to download a standing order form.

Keep up to date with us




Recent Tweets