The Lily Foundation was founded in Lily's memory, having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today.
Did you know every twenty minutes a child is born who will develop Mitochondrial Disease by the age of 16!? There is no cure for this disease which is for many debilitating and life limiting. We have created an animation to explain how important mitochondria are, and what happens when they go wrong.
The Lily Foundation has three aims: To fund research to improve diagnosis and increase treatment options, and ultimately find a cure. To raise much needed awareness of these conditions both in the general population and the medical community. To support families affected by this condition.
The following video was created for our 2015 Ball to show how our families have inspired The Lily Foundation and how The Lily Foundation through your support helps them
Parliament have approved regulations to permit the use of Mitochondrial Donation. Its now time to regulate and licence the process, The HFEA would like your views on some of the operational aspects. Find out more information here.
Congratulations to Alison Maguire for winning the GDST Alumna of the Year, which recognises all her hard work for our charity since the loss of her own daughter Niamh. Alison received an award and The Lily Foundation wins £500. Well done Alison and thank you to everyone who voted.