The Lily Foundation

The Lily Foundation was founded in Lily's memory, having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today.

What's Mitochondrial Disease?

Did you know every twenty minutes a child is born who will develop Mitochondrial Disease by the age of 16!? There is no cure for this disease which is for many debilitating and life limiting. We have created an animation to explain how important mitochondria are, and what happens when they go wrong. 

Our Mission

The Lily Foundation has three aims: To fund research to improve diagnosis and increase treatment options, and ultimately find a cure. To raise much needed awareness of these conditions both in the general population and the medical community. To support families affected by this condition.

You can make a difference

Have a look at The Lily Foundation events or challenge yourself and get involved. As supporters you are the ones that make the difference.

The following video was created for our 2016 Ball to show how our families have inspired The Lily Foundation and how The Lily Foundation through your support helps them and supports crutial research into better treatment and ultimatly a cure.

Postman and Grandad Mark Penfold is walking from Edinburgh to London starting on the 27th May for our charity and his gorgoeous Grandson Frankie. Supported by his employer The Royal Mail and the CWU his walk will end on the 18th June at The Royal Mails 500 year birthday celebrations at The Guild Hall in London. Please pop over and read more about this epic challange. 

Congratulations Team Lily Snowdon 4 Routes in 4 Days

Amazing, incredible, superstars! All words to describe the 42 people who took on Snowdon at the weekend for our charity. Many climbed it 4 times! Our oldest climber was in his 70s. It was such an adventure where friendships were formed and such amazing awareness was raised. Their fundraising total is at over £22k. Thank yo so much to Les Strong for leading the way, The Dancor Group for there sponsership and logisticle support and to everyone who climbed  - you did something amazing - you have given hope.