The Lily Foundation

The Lily Foundation was founded in Lily's memory,having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today.

What's Mitochondrial Disease?

Did you know? Every twenty minutes a child is born who will develop Mitochondrial Disease by the age of 16! There is no cure for this disease. We have created an animation to explain how important mitochondria are, and what happens when they go wrong. 

Our Mission

The Lily Foundation has three aims: To fund research to improve diagnosis and increase treatment options, and ultimately find a cure. To raise much needed awareness of these conditions both in the general population and the medical community. To support families affected by this condition.

You can make a difference

Have a look at The Lily Foundation events or challenge yourself and get involved. As supporters you are the ones that make the difference.


Latest News

Golf Anyone?

Tickets are available for our 2015
Golf Day at Croham Hurst Golf Club in Surrey on the 24th September 2015. golf-ball.jpgTickets are just £75 and include 18 holes of golf, a goodie bag, bacon rolls and a evening dinner hosted by our very own JP. visit our shop for more details.

Congratulations to the 2015 London Marathon Lily Team!

A massive well done to our amazing team at the 2015 London Marathon. It's an incredible thing to have done. You have achieved so much, not only for yourselves but for all of our Lily families and people living with Mitochondrial Disease all over the world! With a team like you guys behind us we know one day will find that cure! Also thank you to our volunteers and those that came to support Team Lily. You can see some photos of the day here.

Fight Night III - 9th April 2015


Congratulations and thank you to our brave Lily warriors who boxed their way through blood, sweat and cheers on the 9/4/15 to ensure that The Lily Fight Night III was a huge success. Also a big thank you to Adam Levanthal, Andy Burton and Andy Scott for their ring side commentary and The Clapham Grand for once again being an amazing venue. Another great night, another great atmosphere - we can't wait for next year!!!!

The Wonderland Ball -14th March 2015

Thank you to everyone that joined us for our 2015 ball - because of you we raised £100,000! That's alot of hope, support and research to help find a cure - you are amazing.

Please watch our 2015 video featuring some of our families, our family day and how you helped to change the law!




£2 a month appeal

£2 is less than the cost of half a pint of lager and is definitely less than a G&T! If all our supporters could spare £2/month you would be making a real difference. Click here to help!

Keep up to date with us

Recent Tweets