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- Where Your Money Has Gone
- Mitochondrial Replacement Therapy
- Research Updates
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- Ways To Donate
The Lily Foundation
Lily Anna Merritt was a beautiful little girl and despite being given days to live, she graced this world with eight months of life. The Lily Foundation was built on Lily's strength and inspired by her fighting spirit. Although The Lily Foundation was founded in Lily's memory, it is not for Lily. It is to give hope, answers and support to the many other children and families that face the challenges of this disease today.
There is no cure or treatment for Mitochondrial Disease.
As we celebrate our 6th year, we are very proud to introduce our new animation.
This video was created to simply and visually explain how important Mitochondria are, and what happens when they go wrong.
This video will be used nationally to help educate and raise awareness of Mitochondrial Disease.... To watch the video click on the play icon...
Our vision is to change this. The Lily Foundation is committed to finding a cure for Mitochondrial Disease. We have a three point mission - fund research to improve diagnosis and treatment options, raise awareness of these conditions to they are more easily recognised, and support families with sick children.
Recent research has shown that 1 in 200 healthy newborns in the UK are born with genetic changes that can cause Mitochondrial Disease and are at risk of passing these changes onto their offspring.
Our first challenge was to raise funds for research that would improve speed and accuracy of diagnosis rates and ultimately find a cure. We are supporting a number of UK hospitals and research centres to strive towards achieving this goal.Tweet
Government release draft regulations for Mitochondrial Replacement Therapy
We are delighted that the Government have now released draft regulations on Mitochondrial Replacement Therapy - a new IVF treatment which would prevent some forms of Mitochondrial Disease being passed from mother to child.
Fight Night 2 -Fight Night for Lily is Back
More information on our events page
£2 a month appeal
£2 is less than the cost of half a pint of lager and is definitely less than a G&T! If all our supporters could spare £2/month you would be making a real difference. Click here to help!
Lily on BBC Radio 4
Lily's Alison Maguire raises awareness of Mitochondrial Disease and tells how Mitochondrial Replacement Therapy could help prevent disease in some affected families. From 16m10s - http://www.bbc.co.uk/radio/player/b03vtcwj
Big Charity Circus Ball 2014 Tickets
Come one! Come all! Step right up into the colourful world of the circus for a fun and flamboyant night to raise as much money as possible for our charity. With a celebrity ring master, a spectacular auction and sensational live music this ball is not to be missed!
Discounted room rates now available HERE
So dust off your top hats, wax your moustaches, shine up your sequins and book early for your admission ticket for the Greatest Circus Ball on Earth!!!
Sponsor the Lily Team
There are many people doing amazing challenges to raise money for our charity. Click here and you can sponsor anyone who has an online sponsorship page.