The Lily Foundation

The Lily Foundation was founded in Lily's memory, having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today.

What's Mitochondrial Disease?

Did you know every twenty minutes a child is born who will develop Mitochondrial Disease by the age of 16!? There is no cure for this disease which is for many debilitating and life limiting. We have created an animation to explain how important mitochondria are, and what happens when they go wrong. 

Our Mission

The Lily Foundation has three aims: To fund research to improve diagnosis and increase treatment options, and ultimately find a cure. To raise much needed awareness of these conditions both in the general population and the medical community. To support families affected by this condition.

You can make a difference

Have a look at The Lily Foundation events or challenge yourself and get involved. As supporters you are the ones that make the difference.

The following video was created for our 2015 Ball to show how our families have inspired The Lily Foundation and how The Lily Foundation through your support helps them

You can support our charity in many ways that don't involve running a marathon. With easyfundraising you can raise money every time you shop on-line. Or how about collecting old stamps ? – visit our ways to donate page for more information.

HFEA would like your views on regulating Mitochondrial Donation

Parliament have approved regulations to permit the use of Mitochondrial Donation. Its now time to regulate and licence the process, The HFEA would like your views on some of the operational aspects. Find out more information here

Alison Maguire Announced GDST Alumna of the Year 2015

Congratulations to Alison Maguire for winning the GDST Alumna of the Year, which recognises all her hard work for our charity since the loss of her own daughter Niamh. Alison received an award and The Lily Foundation wins £500. Well done Alison and thank you to everyone who voted.