The Lily Foundation was founded in Lily's memory, having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today.
Did you know every twenty minutes a child is born who will develop Mitochondrial Disease by the age of 16!? There is no cure for this disease which is for many debilitating and life limiting. We have created an animation to explain how important mitochondria are, and what happens when they go wrong.
The Lily Foundation has three aims: To fund research to improve diagnosis and increase treatment options, and ultimately find a cure. To raise much needed awareness of these conditions both in the general population and the medical community. To support families affected by this condition.
The following video was created for our 2015 Ball to show how our families have inspired The Lily Foundation and how The Lily Foundation through your support helps them
It’s just 1 month till Jeans for Genes Day 2015. We are proud to be supporting this event and ask you to “ Don Your Denim” on the 18/9. Jeans for Genes and Genetic Disorder UK are generously supporting our Family Weekend 2015 bringing families from all over the UK together. Pop across and see how you can get involved.
We are collecting information from people who would like to volunteer their time to give hope and answers to our families. As a small charity volunteers make such a massive difference to us. Simply follow the link below and complete our on-line questionnaire if you would like to get involved.
- Thank you for joining the fight - Lily Volunteer Survey