The Lily Foundation

The Lily Foundation was founded in Lily's memory, having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today.

What's Mitochondrial Disease?

Did you know every twenty minutes a child is born who will develop Mitochondrial Disease by the age of 16!? There is no cure for this disease which is for many debilitating and life limiting. We have created an animation to explain how important mitochondria are, and what happens when they go wrong. 

Our Mission

The Lily Foundation has three aims: To fund research to improve diagnosis and increase treatment options, and ultimately find a cure. To raise much needed awareness of these conditions both in the general population and the medical community. To support families affected by this condition.

You can make a difference

Have a look at The Lily Foundation events or challenge yourself and get involved. As supporters you are the ones that make the difference.

The following video was created for our 2015 Ball to show how our families have inspired The Lily Foundation and how The Lily Foundation through your support helps them

We would like to say a massive thank you to our 2015 Prudential Ride London team who cycled a 100-mile route on closed roads through the capital and into Surrey’s stunning countryside on Sunday 2nd August. They all did it to fight for a cure - you are all inspirational 

Meeting with the AMDF

Last week Liz and Alison met with the Wellcome Trust and Sean Murray from the Australian Mitochondrial Disease Foundation. It was an incredible opportunity to share ideas and experiences in regards to the journey that The Lily Foundation and our families went on to get Mitochondrial Donation approved in the UK. We are sure this will help the AMDF to take it forward in Australia.