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The Lily Foundation
Lily Anna Merritt was a beautiful little girl and despite being given days to live, she graced this world with eight months of life. The Lily Foundation was built on Lily's strength and inspired by her fighting spirit. Although The Lily Foundation was founded in Lily's memory, it is not for Lily. It is to give hope, answers and support to the many other children and families that face the challenges of this disease today.
There is no cure or treatment for Mitochondrial Disease.
As we celebrate our 6th year, we are very proud to introduce our new animation.
This video was created to simply and visually explain how important Mitochondria are, and what happens when they go wrong.
This video will be used nationally to help educate and raise awareness of Mitochondrial Disease.... To watch the video click on the play icon...
Our vision is to change this. The Lily Foundation is committed to finding a cure for Mitochondrial Disease. We have a three point mission - fund research to improve diagnosis and treatment options, raise awareness of these conditions to they are more easily recognised, and support families with sick children.
Recent research has shown that 1 in 200 healthy newborns in the UK are born with genetic changes that can cause Mitochondrial Disease and are at risk of passing these changes onto their offspring.
Our first challenge was to raise funds for research that would improve speed and accuracy of diagnosis rates and ultimately find a cure. We are supporting a number of UK hospitals and research centres to strive towards achieving this goal.Tweet
Congratulations to The 2013 Lily Virgin London Marathon Team
A huge congratulations to the Lily Team who completed the 2013 Virgin London Marathon. As always such an amazing and emotional day for everyone. I felt so proud of all our amazing angel butterflies! Thank you once again to the BBC for interviewing JP on London Bridge. JP would like to say a special thank you to Kathy and her team at Freedom Leisure for training him for this years marathon. Thank you everyone x
Contact Phone number
Please call 07947257247 to contact Liz at The Lily Foundation, the listed number is temporarily out of order.
The Lily Ball 2013
Thank you to everyone who came along and supported The Lily Ball on Saturday 23rd March. It was a great evening, with an electric atmosphere. Terry Alderton was amazing and the band fantastic. We have been receiving messages ever since such as 'Best ball yet!'. Our total has not yet been finalised. Thank you everyone
Up and coming events
Save the dates:
Thursday 6th June 2013 - Lily Race Day - Sandown Race Course, Surrey
For more information click here
Sponsor the Lily Team
There are many people doing amazing challenges to raise money for our charity. Click here and you can sponsor anyone who has an online sponsorship page.
£2 a month appeal
We launched our £2 a month appeal at our annual ball in March 2010. We have had a great response so far so please, if you can, subscribe to our £2 a month appeal - it really does help to make a difference. Click here to download a standing order form.