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The Lily Foundation
Lily Anna Merritt was a beautiful little girl and despite being given days to live, she graced this world with eight months of life. The Lily Foundation was built on Lily's strength and inspired by her fighting spirit. Although The Lily Foundation was founded in Lily's memory, it is not for Lily. It is to give hope, answers and support to the many other children and families that face the challenges of this disease today.
There is no cure or treatment for Mitochondrial Disease.
As we celebrate our 6th year, we are very proud to introduce our new animation.
This video was created to simply and visually explain how important Mitochondria are, and what happens when they go wrong.
This video will be used nationally to help educate and raise awareness of Mitochondrial Disease.... To watch the video click on the play icon...
Our vision is to change this. The Lily Foundation is committed to finding a cure for Mitochondrial Disease. We have a three point mission - fund research to improve diagnosis and treatment options, raise awareness of these conditions to they are more easily recognised, and support families with sick children.
Recent research has shown that 1 in 200 healthy newborns in the UK are born with genetic changes that can cause Mitochondrial Disease and are at risk of passing these changes onto their offspring.
Our first challenge was to raise funds for research that would improve speed and accuracy of diagnosis rates and ultimately find a cure. We are supporting a number of UK hospitals and research centres to strive towards achieving this goal.Tweet
Lily Foundation Countdown to Christmas!
All they want for Christmas is a cure... Why not donate money to the Lily Foundation instead of buying Christmas cards?
Home and Away Soap tackles Mitochondrial Disease!
Home and Away viewers have been captivated by the return of Sally Fletcher (played by Actress Kate Richie) to Summer Bay with her 8 year old daughter Pippa who has been diagnosed with Mitochondrial Disease. To read more click [here]
"Early Bird" Ball 2014 Tickets
"Early Bird" ticket price of just £100 per person if you book before 25th December.
Come one! Come all! Step right up into the colourful world of the circus for a fun and flamboyant night to raise as much money as possible for our charity. With a celebrity ring master, a spectacular auction and sensational live music this ball is not to be missed!
So dust off your top hats, wax your moustaches, shine up your sequins and book early for your admission ticket for the Greatest Circus Ball on Earth!!!
Sponsor the Lily Team
There are many people doing amazing challenges to raise money for our charity. Click here and you can sponsor anyone who has an online sponsorship page.