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The Lily Foundation

Lily Anna Merritt was a beautiful little girl and despite being given days to live, she graced this world with eight months of life. The Lily Foundation was built on Lily's strength and inspired by her fighting spirit. Although The Lily Foundation was founded in Lily's memory, it is not for Lily. It is to give hope, answers and support to the many other children and families that face the challenges of this disease today.

There is no cure or treatment for Mitochondrial Disease.

Caroline and Dave Camis feature in The 2011 Lily Foundation Video Presentation. They tell their story of living with a child suffering from Mitochondrial Disease and their journey with Charlie so far...To watch the video click on the play icon...

Our Vision

Our vision is to change this. The Lily Foundation is committed to finding a cure for Mitochondrial Disease. We have a three point mission- fund research, train doctors and support families with sick children.

Recent research has shown that 1 in 200 healthy newborns are carriers of Mitochondrial Disease and are at risk of passing the disease onto their offspring.

Our Challenge

Our first challenge is to raise £400,000 to fund a gene testing programme that will use chip technology to speed up diagnosis and advance research into finding a cure.

Help us to make a difference. Have a look at The Lily Foundation events or challenge yourself and get involved. There may be something that might just interest you!

Latest News

Tickets for the 2012 Comedy Gala Now Available

Monday 6th February 2012 - The Comedy Store, London

The line - up for our 2012 comedy gala has been confirmed with comperes Kevin Day and Ian Smith and comedians Sean Lock, Jon Richardson, Seann Walsh, Josh Widdicombe and Shappi Khorsandi.

Tickets are available to buy via the Comedy Store website or follow this link - TICKETS.

Amazing Abseiling

James Kay and 34 other daredevils abseiled down Guy's Tower at the end of last year - well done everyone!

Fundraisers

We have many people doing wonderful things for The Lily Foundation - please look at our Get Involved pages to see what they have done under Thank You and how you can support them under Sponsor the Lily Team.

Date for Your Diary

The Lily Foundation will be hosting our 5th Annual Ball on Saturday 24th March 2012 at The Park Plaza Riverbank Hotel London. Tickets are £100 per person.

Last year this event sold out - don't miss out this year! You can buy your tickets here via our online shop.

£2 a month appeal

We launched our £2 a month appeal at our annual ball in March 2010. We have had a great response so far so please, if you can, subscribe to our £2 a month appeal - it really does help to make a difference. Click here to download a standing order form.