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The Lily Foundation

Lily Anna Merritt was a beautiful little girl and despite being given days to live, she graced this world with eight months of life. The Lily Foundation was built on Lily's strength and inspired by her fighting spirit.  Although The Lily Foundation was founded in Lily's memory - it is not for Lily. It is to give hope, answers and support to the many other children and families that face the challenges of this disease today.

There is no cure or treatment for Mitochondrial Disease.

Our vision

Our vision is to change this. The Lily Foundation is committed to finding a cure for Mitochondrial Disease. We have a three point mission; fund research, train doctors and support families with sick children.

Recent research has shown that 1 in 200 healthy newborns are carriers of Mitochondrial Disease and are at risk of passing the disease onto their offspring.

Our Challenge

Our first challenge is to raise £400,000 to fund a gene testing programme that will use chip technology to speed up diagnosis and advance research into finding a cure.

Help us to make a difference. Have a look at The Lily Foundation events or challenge yourself and get involved. There may be something that might just interest you!

Latest News

Check out our New Events

Saturday 11th July - Sponsored Swim. Click for details

Monday 21st September - The Lily Foundation London/Surrey Golf Day. How to book ...

Monday 12th October -  Italian Night at Bagattis. Always a sell out. Watch this space on how to reserve your tickets.  For further details...

Sponsor The Lily Team

To sponsor our runners, hikers and bike riders click here

The Lily Foundation wins at the Races as we reach £200,000

Thank you to all our guests at Brighton racecourse, who helped us raise over £8000 and saw The Lily Foundation break the £200,000 milestone.  A huge thanks to John Motson and Tony Gale who hosted a fantastic day click here to read more..