The Lily Foundation

The Lily Foundation was founded in Lily's memory, having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today.

What's Mitochondrial Disease?

Did you know every twenty minutes a child is born who will develop Mitochondrial Disease by the age of 16!? There is no cure for this disease which is for many debilitating and life limiting. We have created an animation to explain how important mitochondria are, and what happens when they go wrong. 

Our Mission

The Lily Foundation has three aims: To fund research to improve diagnosis and increase treatment options, and ultimately find a cure. To raise much needed awareness of these conditions both in the general population and the medical community. To support families affected by this condition.

You can make a difference

Have a look at The Lily Foundation events or challenge yourself and get involved. As supporters you are the ones that make the difference.

The following video was created for our 2015 Ball to show how our families have inspired The Lily Foundation and how The Lily Foundation through your support helps them

We just wanted to say a huge and massive thank you to all of you who took part in our 2015 Golf Day at Croham Hurst.  A big thank you to JP, Les Strong and Phil Tufnell for joining us and making our evening.  A huge congratulations to Niall, Scott, Oz and Jon who took the Lily Cup for 2015 - well done guys! Thanks to a great sponsorship from Swiss Post Solutions and to everyone who took part in the on course competitions,  auction and raffle we raised  a huge £11,427.68, making it our most successful golf day since 2008.  Thank you !!!!!

Thank You!

Mitochondrial Disease Awareness Week is over for 2015. We want to thank you all for helping us in so many ways to make more people #mitoaware. For our families its not about 1 week a year its about every single day. Your continued support helps us to help them so please get involved and we can keep fighting for a cure.