There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.
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Events 2 May 2024
Applied for a place in the ballot for next year’s London Marathon? From dedicated cheering squads to free beer and a massage, here are five great reasons to run this once-in-a-lifetime challenge for The Lily Foundation and help fight mitochondrial disease.
Events 25 April 2024
A huge shoutout to all the incredible Lily runners who completed the London Marathon last weekend, raising an incredible £127,000 to help fight mitochondrial disease. This year, the world’s greatest marathon saw a record field of over 50,000 participants, and 44 of them wore Lily colours.
Events 27 March 2024
Once upon a time, there was a beautiful ball held in a fabulous hotel for a group of very special people. That time was last Saturday, and that occasion was our annual charity ball, the most anticipated event in the Lily calendar.
Events 21 December 2023
Tickets are selling fast for next year’s Comedy Night, which got us wondering what it is about this event that makes it so successful. Over the years we’ve seen sell-out show after sell-out show featuring star-studded line ups including Tim Vine, Josh Widdicombe, Alan Davies, Joe Pasquale, Shaun Walsh, Sarah Millican, Marcus Brigstock, Katherine Ryan and many more.
Events 20 October 2023
With Newcastle’s last Patient Information Day having taken place back in 2019, it was clear by the attendance this year that mitochondrial disease patients were delighted to have this social engagement back on the calendar. As were we, since it offers us a great chance to raise awareness amongst patients about our support services.
Events 3 October 2023
What better way to feel part of a community than by gathering together for a weekend of shared physical challenges and emotional support in a stunning location. That’s exactly what motivated 18 young adult mito patients to head to the beautiful Lake District for the Lily Young Adult Weekend recently.
Events 27 July 2023
End-of-term traffic jams, train strikes, unseasonal weather and wild horses couldn’t stop around 60 mito families from coming together with medical experts, Lily staff and volunteers for this year’s highly anticipated Family Weekend.
Events 9 May 2023
It may have been a soggy one at this year’s London Marathon, but the rain didn’t dampen the spirits of our amazing runners, nor those of our rowdy cheer squads who yelled and shouted from beneath umbrellas and waterproofs to spur our athletes along the 26.2-mile course.
Events 4 May 2023
There’s always a sense of anticipation leading up to Lily Fight Night, and this year was no different. Over 350 spectators packed into The Clapham Grand, eager to watch our fundraising fighters, with many more tuning in to enjoy the action via our YouTube live stream. And the evening certainly lived up to expectations!
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