There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.
From personal stories about families affected by the disease to the latest research projects and plenty more, why not sign up to our newsletters, and follow us on social media, to ensure you never miss a thing.
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Personal stories 26 September 2023
Last week, BBC Points West ran a story about team member Sarah, who came across The Lily Foundation back in 2018 after losing her two daughters to mitochondrial disease.
Awareness 24 September 2023
Everyone at Lily HQ was delighted to hear the exciting news that our founder and CEO, Liz, was honoured with a National Lottery Local Health Hero Award at The Sun’s recent Who Cares Wins awards.
Personal stories 18 September 2023
Every summer the organisers of the Royal Parks Half Marathon launch their Inspire campaign, sponsored by Royal Bank of Canada, to seek out five inspirational runners, and this year one of their winners is Lily supporter Reanna!
Research 12 September 2023
The landscape around mitochondrial research is changing all the time as new approaches are considered and new projects undertaken. One such project is a trial using stem cells to treat muscle damage in mitochondrial myopathy patients, and we spoke with Bert Smeets, Professor of Clinical Genomics at Maastricht University, about how this technology could help in mitochondrial care.
Research 12 September 2023
Everyone at The Lily Foundation was delighted to hear the recent news that the UK is to rejoin Horizon Europe, the EU’s key funding programme for research and innovation. The scheme provides access to a huge pot of money that UK-based scientists and institutions will be able to apply for again, so naturally brings hope of further research into treatments for mitochondrial diseases.
Awareness 4 September 2023
Last month would have been Lily’s 17th birthday, and everyone involved with The Lily Foundation took a moment to reflect on such a poignant milestone.
Research 3 August 2023
We know through our mito patients and families that there’s a pressing need to develop epilepsy best practice guidelines, so Alison, The Lily Foundation’s Head of Research, was delighted to pack her suitcase and head over to Budapest to represent the charity at a recent global epilepsy best practice workshop.
Events 27 July 2023
End-of-term traffic jams, train strikes, unseasonal weather and wild horses couldn’t stop around 60 mito families from coming together with medical experts, Lily staff and volunteers for this year’s highly anticipated Family Weekend.
Research 26 July 2023
As we continue to celebrate our milestone 15th year improving the lives of mito patients, this month we’re focusing on the partnerships we’ve created over those 15 years that have helped us build our charity and expand the mito community at home and around the world.
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