There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.
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Events 4 May 2023
There’s always a sense of anticipation leading up to Lily Fight Night, and this year was no different. Over 350 spectators packed into The Clapham Grand, eager to watch our fundraising fighters, with many more tuning in to enjoy the action via our YouTube live stream. And the evening certainly lived up to expectations!
Awareness 3 May 2023
Did you know that people affected by mitochondrial disease may also suffer from dystonia – that’s a condition where uncontrollable and sometimes painful muscle spasms are caused by incorrect signals from the brain.
Research 21 April 2023
We know all too well how tough it is to get a mitochondrial disease diagnosis here in the UK, even with our wonderful NHS and the support The Lily Foundation offers. So imagine suffering from mito and living somewhere like Zambia, Brazil, India or Turkey – it must be almost impossible to get answers.
Support 17 April 2023
One of the reasons The Lily Foundation exists is to help give a voice to mito patients and their families, to enable them to have a say in the services and support available. A lot has changed in the last 15 years, and we’re proud of the progress we’ve made, but we don’t intend to rest on our laurels, because understanding mitochondrial disease is the key to unlocking effective treatments and that eventual cure.
Personal stories 14 April 2023
If you couldn’t walk, couldn’t see properly and were hampered by a severe lack of energy, climbing a mountain probably wouldn’t be top of your ‘to do’ list. Not so for mito patient Ian, who has set himself the remarkable challenge of summitting Snowdon this summer.
Support 14 April 2023
As part of our mission to support families affected by mitochondrial disease, we believe that should cover financial support too. So we’re delighted to welcome our new Benefits Advisor, Chrissy, to the Lily team. We caught up with her to see how she’s planning to help mito patients and their families navigate the tricky topic of financial welfare.
Personal stories 6 April 2023
Three years ago, on the day of her son Harry’s 10th birthday, Donna should have been running the London Marathon. But the pandemic was sweeping across the globe and the race was cancelled.
Events 4 April 2023
It’s the biggest night in boxing history since The Rumble in the Jungle… Secure your ringside seat today to witness The Clash at the Clapham, part of the famous Lily Fight Night taking place on Thursday 27th April at the iconic Clapham Grand in London.
Support 30 March 2023
Being diagnosed with mitochondrial disease can be not only a frightening and upsetting time, but it can also be very lonely. Because mito is so rare, sometimes friends and family just don't understand, so it’s hard to find people who are in the same situation to talk to, to share hopes and fears with, and find support. And that’s why The Lily Foundation have been bringing people together for the last 15 years.
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