There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.
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Support 10 March 2023
Last week saw the first in-person mito Patient Information Evening since the Covid pandemic, and it’s clear from the attendance – and distances travelled – that everyone was delighted to be able to come together in person once again.
Personal stories 8 March 2023
Fortunately, these days we’re surrounded by women setting incredible examples to us, balancing their careers with bringing up children alongside all the other demands of modern life. But what about when those children have special needs?
Support 27 February 2023
For 15 years now we’ve been providing much-needed support to sufferers of mitochondrial disease, their families and carers. There are lots of ways to make the lives of affected families easier and more enjoyable, but they can come at a price. And that’s why we’re delighted to launch the Lily Wish Fund.
Events 27 February 2023
What do you get when you cross several side-splitting stand-ups with a fantastic charity? A winning formula for the legendary Lily Comedy Night, of course!
Personal stories 13 February 2023
It’s Rare Disease Day on February 28th, so to shine a spotlight on the millions of people around the world living with a rare disease, we asked mito patient Amy to tell us what it’s like to be rare.
Research 8 February 2023
The Lily Foundation were proud to co-fund the first study to investigate the role of a Low Residue Diet (LRD) in helping to improve gut symptoms in patients with mitochondrial disease.
Personal stories 7 February 2023
For some parents, learning their child needs to use a feeding tube can make them feel anxious and overwhelmed, but as part of Feeding Tube Awareness Week we wanted to share a heart-warming story that showcases the incredible benefit a feeding tube can bring.
Support 3 February 2023
At the recent 49th British Paediatric Neurology Association conference in Edinburgh, we found ourselves one of just eight exhibitors invited to host a stand and display our work. What’s more, it was with great excitement that we discovered The Lily Foundation were the only charity selected to deliver an oral presentation at the event.
Personal stories 30 January 2023
The loss of her baby cousin to mitochondrial disease at only three months old inspired Natasha to dedicate her medical research to this incurable genetic condition that she and her family knew so little about.
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