There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.
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Research 26 January 2023
Alison Maguire (Head of Research and Finance) and Katie Waller (Science and Patient Engagement Officer) are delighted to be attending the British Paediatric Neurology Association’s 49th Annual Scientific Meeting, being held at The Royal College of Physicians of Edinburgh from the 25th-27th January 2023.
Research 25 January 2023
It was a busy end to 2022 for Alison Maguire (Head of Research and Finance) and Katie Waller (Science and Patient Engagement Officer), who have been proudly representing The Lily Foundation at a range of recent events aimed at medical professionals, scientists and researchers.
Research 15 December 2022
As we celebrate our 15th anniversary year, we can feel proud of what our charity has done to advance research into mitochondrial disease.
Research 15 December 2022
The Lily Foundation is funding important new research to improve diagnostic rates for complex cases of mitochondrial disease, fulfilling an urgent need for patients who are unable to get a confirmed diagnosis via the NHS.
Awareness 15 December 2022
Our CEO, Liz Curtis, looks back on a remarkable year that saw The Lily Foundation bounce back stronger than ever after the challenges of the Covid-19 pandemic.
Fundraising 22 November 2022
Each month throughout our anniversary year we'll be highlighting a different asset of our charity. We kick off this month with a focus on 15 years of Lily fundraising power!
Research 22 November 2022
The Lily Foundation is proud to announce the launch of a new online database that will give people with mitochondrial diseases a voice in research and care provision.
Events 26 October 2022
Young people with mitochondrial disease enjoyed an action packed trip to the Lake District when The Lily Foundation hosted its second annual Young Adult Weekend.
Awareness 18 October 2022
When Liz Curtis set up The Lily Foundation with her family in 2007, her aim was to raise £50,000 to support people affected by mitochondrial disease. She has achieved so much more than that original aim.
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