News - The Lily Foundation
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Fighting mito,
finding hope.

News

Stay connected with the mitochondrial disease community

Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

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Events Fundraising
9 October 2025

Wanted: a prize that money can’t buy

Every bid at a Lily Foundation auction helps change lives. By donating a unique or ‘money can’t buy’ prize, you can help us raise vital funds to support patients and families living with mitochondrial disease and drive forward the research that gives hope for the future. Your generosity could turn one special occasion into a tangible difference.

Support
23 September 2025

Empowering patients in the fight against mitochondrial disease

Healthcare providers are increasingly turning to patients for expert input, and we believe that empowering patients and their families to share their unique stories is key to improving care, guiding research and, ultimately, finding a cure. Here we look at The Lily Foundation's role in promoting patient advocacy and how together we can make sure the mito community is truly heard.

Research Personal stories
19 September 2025

Mary’s fight for her sight: bringing about a treatment for LHON

When Mary was diagnosed with LHON in 2022, her world changed overnight. But instead of accepting her fate, she took on a fight that could rewrite the story for many facing this rare form of mitochondrial disease. On LHON Awareness Day, discover how Mary’s determination has paved the way for a new treatment – and renewed hope.