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Discover the latest updates from The Lily Foundation and the wider mitochondrial disease community. You’ll find news, personal stories, research updates and insights into the vital support we provide for those affected by mitochondrial disease.

From inspiring stories of families living with mitochondrial disease to breakthroughs in mito research and much more, there’s plenty going on. Sign up to our newsletters and follow us on social media to stay informed and connected – don’t miss a thing!

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Research
11 February 2025

Making an IMPACT in the fight against mitochondrial disease

At The Lily Foundation, we understand that true progress in the fight against mitochondrial disease starts with listening to those who live with the condition. That’s why, after the success of our pilot Expert Patient Input Committee (EPIC) last year, we’re excited to announce its evolution into something even bigger and better – introducing IMPACT!