There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.
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Personal stories 31 May 2023
With Carers Week taking place from 5th-11th June, we wanted to highlight some of the challenges unpaid carers face and recognise the quiet contributions they make to society.
Personal stories 25 May 2023
Every volunteer has a story to tell. To mark Volunteers’ Week (1st to 7th June), Becca told us why she regularly gives up her time to help The Lily Foundation and how she benefits from the experience.
Personal stories 17 May 2023
May is National Walking Month, and two people really feeling the benefit of all that fresh air and exercise are Ami and Danny, who lost their baby son Otto to mito, and who have a mountain to climb in his memory.
Personal stories 14 April 2023
If you couldn’t walk, couldn’t see properly and were hampered by a severe lack of energy, climbing a mountain probably wouldn’t be top of your ‘to do’ list. Not so for mito patient Ian, who has set himself the remarkable challenge of summitting Snowdon this summer.
Personal stories 6 April 2023
Three years ago, on the day of her son Harry’s 10th birthday, Donna should have been running the London Marathon. But the pandemic was sweeping across the globe and the race was cancelled.
Personal stories 30 March 2023
What would you do if you knew that one day you’d no longer be able to speak, talk to your family or chat with your friends? That’s the harsh reality for mito patient Bal, whose voice is rapidly deteriorating, and who’s ready to spread the word about the positive effects of voice banking.
Personal stories 8 March 2023
Fortunately, these days we’re surrounded by women setting incredible examples to us, balancing their careers with bringing up children alongside all the other demands of modern life. But what about when those children have special needs?
Personal stories 13 February 2023
It’s Rare Disease Day on February 28th, so to shine a spotlight on the millions of people around the world living with a rare disease, we asked mito patient Amy to tell us what it’s like to be rare.
Personal stories 7 February 2023
For some parents, learning their child needs to use a feeding tube can make them feel anxious and overwhelmed, but as part of Feeding Tube Awareness Week we wanted to share a heart-warming story that showcases the incredible benefit a feeding tube can bring.
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