There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.
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Research 22 February 2024
Back in 2020, The Lily Foundation funded a research study that aimed to develop a framework to help identify the cause of balance problems in people with mitochondrial disease. That study is now complete, and the questions in the framework have been shown to accurately rule in or rule out vestibular causes of imbalance and dizziness in mito patients so that they can access appropriate treatment.
Research 25 January 2024
There’s a lot going on in the world of mitochondrial disease research right now, making it an exciting time in the quest for treatments. And as the amount of ongoing research has grown, so has our team – meet our new Research Manager, Maria
Research 9 November 2023
Back in December 2019, we were delighted to announce the latest addition to our Lily-funded research team, PhD student Yasmin Tang. Nearly four years on, not only has Yasmin completed her PhD but she’s been awarded the Faculty Doctoral Thesis Prize for her studies. Proof that we only back the best here at The Lily Foundation!
Research 7 November 2023
Raising awareness about mitochondrial disease, and about The Lily Foundation, is always top of our agenda so we were delighted to accept an invitation to talk about our work at the Annual Cambridge Paediatric Mitochondrial Meeting earlier in November.
Research 26 October 2023
Research is the key to finding treatments and an eventual cure for mito, and we believe the real experts are the people living with the disease. That’s why we’re launching a new Expert Patient Input Committee – in short, EPIC: a committee made up entirely of people affected by mito who are willing to share their experiences to help shape research, clinical care and treatments.
Research 12 September 2023
The landscape around mitochondrial research is changing all the time as new approaches are considered and new projects undertaken. One such project is a trial using stem cells to treat muscle damage in mitochondrial myopathy patients, and we spoke with Bert Smeets, Professor of Clinical Genomics at Maastricht University, about how this technology could help in mitochondrial care.
Research 12 September 2023
Everyone at The Lily Foundation was delighted to hear the recent news that the UK is to rejoin Horizon Europe, the EU’s key funding programme for research and innovation. The scheme provides access to a huge pot of money that UK-based scientists and institutions will be able to apply for again, so naturally brings hope of further research into treatments for mitochondrial diseases.
Research 3 August 2023
Epilepsy is common to a number of mitochondrial diseases, with both adult patients and children often experiencing symptoms. So we were delighted when Alison, The Lily Foundation’s Head of Research, was invited to represent the charity at a recent global epilepsy best practice workshop in Budapest.
Research 26 July 2023
As we continue to celebrate our milestone 15th year improving the lives of mito patients, this month we’re focusing on the partnerships we’ve created over those 15 years that have helped us build our charity and expand the mito community at home and around the world.
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