There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.
From personal stories about families affected by the disease to the latest research projects and plenty more, why not sign up to our newsletters, and follow us on social media, to ensure you never miss a thing.
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Personal stories 30 January 2023
The loss of her baby cousin to mitochondrial disease at only three months old inspired Natasha to dedicate her medical research to this incurable genetic condition that she and her family knew so little about.
Personal stories 10 October 2022
This week is Baby Loss Awareness Week, and also marks the 15th anniversary of The Lily Foundation. Our CEO Liz Curtis reflects on a journey that began with the most painful loss and became a vital force for change and hope.
Personal stories 2 June 2022
This Carers Week (6-12 June) we get an insight into the life of an unpaid carer from Nicolette Darch, who cares for her adult daughter Sian, who has mitochondrial disease.
Personal stories 1 June 2022
Volunteers' Week recognises the important contribution volunteers make to society, but the rewards make it worth every minute you spend helping out, writes one of Lily's longest-serving volunteers, Peter Bagatti.
Personal stories 11 May 2022
International Nurses Day is observed around the world on 12 May (the anniversary of Florence Nightingale's birth) to honour the contribution that nurses make to society. To mark the occasion we hear from Chloe Poole, a Metabolic Clinical Nurse Specialist at Bristol Royal Hospital for Children.
Personal stories 23 March 2022
After losing their 18-month-old son, Aidan, to mito, Simon and Lucy dedicated themselves to supporting other mito families and fundraising to find a cure. Here the couple share their tips on how to make a difference, from running a marathon to nailing a corporate sponsorship pitch.
Personal stories 23 December 2021
We're sharing some short Q&As with our Medical Board members, to give an insight into their roles and find out what its like to work at the leading edge of mitochondrial research. This month we meet Professor Joanna Poulton, Honorary Consultant in Mitochondrial Genetics at Nuffield Dept of Women's & Reproductive Health, University of Oxford.
Personal stories 22 December 2021
Our supporters are always coming up with new and creative ways to raise funds and awareness about mitochondrial disease. None more so than Michael and Maxine Heyburn, who have raised over £4000 by transforming an old ash tree into a beautiful owl sculpture.
Personal stories 25 November 2021
I couldn't save my two daughters from mitochondrial disease, but now I'm doing what I can to help others, writes skydiving Lily fundraiser Sarah Moore.
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