There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.
From personal stories about families affected by the disease to the latest research projects and plenty more, why not sign up to our newsletters, and follow us on social media, to ensure you never miss a thing.
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Support 22 October 2019
The Lily Foundation has received a National Lottery grant to help expand its Patient Engagement Day (PED) programme for people affected by mitochondrial disease.
Support 21 October 2019
Adults with mito were given support, information and chance to connect at a Patient Engagement Day co-hosted by The Lily Foundation.
Support 17 July 2019
A cure for mitochondrial disease might still be some way off, but for the many affected families, doctors and volunteers who came together for the 6th annual Lily Family Weekend, the sense that we are heading in the right direction was stronger than ever.
Support 12 April 2019
The Lily Foundation was in Newcastle last weekend to support the 12th Annual Patient Information Day hosted by the Wellcome Centre for Mitochondrial Research (WCMR) and Newcastle Clinical Team.
Support 10 April 2019
As healthcare providers increasingly turn to patients and their families for expert input, we look at The Lily Foundation's role in promoting patient advocacy.
Support 11 March 2019
Planning a disabled-friendly holiday can feel nerve-wracking, but with the right know-how the sky's the limit, writes Karen Cianfini.
Support 3 December 2018
The Lily Foundation has continued its focus on improving services for adults affected by mitochondrial disease by co-hosting two very successful Patient Information Days (PIDs).
Support 29 June 2018
This July the National Health Service turns 70. To celebrate we've put together five key ways in which The Lily Foundation works closely with the NHS to support patients and families affected by mitochondrial disease. It's a unique partnership between a small, specialised charity and one of the world’s largest publicly funded health services, and one that we are immensely proud to uphold.
Support 12 February 2018
This Valentine's Day we're telling all our wonderful supporters how much we love them. And that includes you! Read on to find out why you make our heart go pop.
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