There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.
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Personal stories 26 October 2021
Christine Beal, co-founder and chair of our partner charity My Mito Mission, tells us about working with Lily, taking her daughter's legacy forward, and why mitochondrial research is worth shouting about.
Personal stories 12 August 2021
When we lost our first child to mitochondrial disease we feared we'd never be able to have more, but thanks to The Lily Foundation we now have the family we always wanted, writes Claire Tranter.
Personal stories 23 June 2021
12-year-old Harry Johnson has Leigh Syndrome, a form of mitochondrial disease. We hear from his mum, Lucy Johnson on learning to live with the condition and what it's like to have a child diagnosed.
Personal stories 23 March 2021
For people with mitochondrial disease, the Covid lockdown has added to a sense of isolation that's all too familiar, and emerging safely isn't simply a matter of getting a jab. We hear from three of those affected, plus Lily's resident psychologist.
Personal stories 5 March 2021
Rupinder Bains is a member of The Lily Foundation's Board of Directors, MD of the law firm Pinder Reaux & Associates, and the first ever Asian woman to serve on the Board of The Football Association (The FA).
Personal stories 7 October 2020
After losing her daughter to mitochondrial disease, children's writer and illustrator Hannah Chapman made a book to help others cope with grief. Here she talks about the creative process behind Yellow Day, and how it first took shape years before her own experience of bereavement.
Personal stories 30 September 2020
Read the moving story of Tirion Ray, who died in 2018 after being diagnosed with mitochondrial disease, as told by her mother to The Bristol Post.
Personal stories 4 September 2020
Charlie Withers tragically died aged 2, after being diagnosed with mito at 18 months. Read her story as told to The Sun by her mother, Anna.
Personal stories 30 August 2020
Joanna Wells is mum to siblings Rachael and Joseph, both diagnosed with mitochondrial disease. Read her story as told to Metro newspaper.
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