There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.
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Personal stories 24 June 2020
Theo Amani-Gibbs has mitochondrial disease, but has taken on a 20-mile walking / pedalling challenge for My Mito Miles, the virtual fundraising event organised by The Lily Foundation.
Personal stories 1 June 2020
Lockdown restrictions might be easing, but people with mito are more vulnerable than ever in this crisis. Here's how you can help.
Personal stories 18 May 2020
A young girl with mitochondrial disease has raised thousands of pounds for The Lily Foundation by taking on the 2.6 Challenge and winning in style.
Personal stories 3 March 2020
Katie Curtis, Lily's auntie, has been supporting The Lily Foundation for 13 years. Here she talks about why she's still as motivated as ever, and how it feels to take a punch on the nose for a good cause.
Personal stories 12 February 2020
When a child has severe disabilities, the support provided by an attentive sibling not only helps take the strain off busy parents, it can also work developmental wonders. We talked to Jemma Gregory about the bond between her children Isabelle, 8, who has a mitochondrial disorder, and Isaac, 10, who is devoted to her care.
Personal stories 16 January 2020
Lily Chairman, Ben Carter is running a half marathon for Lily – and following it up by climbing Mount Kilimanjaro.
Personal stories 14 January 2020
For professional musician Jason Shaw, landing the starring role in a Buddy Holly tribute show was a dream job. When mitochondrial disease threatened to derail it, he turned to The Lily Foundation for help.
Personal stories 4 December 2019
Dean Curtis, the newest member of our Board of Directors, on why there's never been a better time for businesses and charities to work together.
Personal stories 13 November 2019
Last November, Hannah and her partner Ben lost their baby daughter Maisie to mitochondrial disease. Hannah has written about Maisie's journey on her blog AmazingMaisie.com, and in the wake of Baby Loss Awareness Week we asked her to share her thoughts and feelings as she prepares for the first anniversary of Maisie's death. Here they are, in Hannah's own words.
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