There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.
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Research 17 May 2022
Researchers working with The Lily Foundation have published the results of an international study into the risks of COVID-19 in people with Primary Mitochondrial Diseases (PMDs).
Research 22 April 2022
We talk to pioneering neurologist Prof Antonella Spinazzola about the inspiration behind her groundbreaking mito research, and her hopes for finding a cure.
Research 21 April 2022
The Lily Foundation met with international mito organisations to advance patient interests and facilitate the collection of patient-reported data for research.
Research 29 March 2022
Lily Foundation staff members Alison Maguire and Katie Waller took part in an ENMC International Workshop on Leigh Syndrome over the weekend (March 25-27th). ENMA (the European Neuromuscular Centre) is a worldwide organisation that coordinates workshops focused on rare neuromuscular diseases.
Research 14 March 2022
A patient-first approach to research is the best hope of finding a cure for mitochondrial disease, writes our newly appointed Science and Patient Engagement Officer, Katie Waller.
Research 7 March 2022
Professor Gráinne Gorman is a Consultant Neurologist, Director of the Wellcome Centre for Mitochondrial Research, and a member of The Lily Foundation Medical Board. To mark International Women's Day, we spoke to Gráinne about her role at WCMR, and the work she and her team is doing to raise awareness of mitochondrial disease and find curative therapies.
Research 21 February 2022
A research study co-funded by the Lily Foundation has shown that defective mitochondria – the ‘batteries’ that power the cells of our bodies – could in future be repaired using gene-editing techniques.
Research 21 February 2022
A growing number of scientists believe it's time to stop viewing mitochondrial health as a niche field and make it part of everyday healthcare. Professor Ana Andreazza is one of those trying to get the message out.
Research 27 January 2022
Clinical trials of a drug that could treat seizures in people with mitochondrial diseases are set to begin in the UK. We talked to Matthew Klein of PTC Therapeutics to find out more.
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