There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.
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Personal stories 23 September 2019
Oxfordshire farmer Stuart Connor has set a new British shearing record, dedicating his achievement to his three-year-old daughter Grace, who died from mitochondrial disease last year.
Personal stories 5 June 2019
My daughter has mitochondrial disease and being her full-time carer is heartbreaking – sometimes I just want to be her mum, writes Angela Jakubowski
Personal stories 17 May 2019
After losing her young son to mitochondrial disease, walking hundreds of miles in his memory helped Melissa Streete cope with grief and raise awareness about the condition that took his life.
Personal stories 27 February 2019
Harry Cozens has been living with MERRF syndrome all his life, but it took nearly 20 years for his illness to be correctly diagnosed. We talked to Harry and his mother, Mandy Norris, about an ordeal all too common for adults with a mitochondrial disease.
Personal stories 11 February 2019
Let the Valentine's Day vibes wash over you with this moving video of Sophie and Jamie's wedding.
Personal stories 29 January 2019
A tandem skydive is an unforgettable thrill and a great way to fundraise for The Lily Foundation, writes Morgan Gillam.
Personal stories 25 January 2019
I'm so proud of my son for caring for his younger brother who has mitochondrial disease – but now that he's leaving home we're not sure how we'll cope, writes Alison Haywood.
Personal stories 13 November 2018
Oxfordshire wool producer Stuart and his wife Kira suffered heartbreak this April when they lost their three-year-old daughter, Grace, to mitochondrial disease. Stuart turned to competitive shearing as a way to cope, qualified for the national team against the odds, and is now training for the World Shearing Championships. Here, Stuart talks openly about dealing with grief, and the happy memories of Grace that mean so much.
Personal stories 13 September 2018
Charlie was just two years old when she lost her battle with mito. To mark Mito Awareness Week, her Uncle Mike is cycling 771 miles - one for every day of Charlie's life. Here Charlie's dad Steve tells the story.
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