There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.
From personal stories about families affected by the disease to the latest research projects and plenty more, why not sign up to our newsletters, and follow us on social media, to ensure you never miss a thing.
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Research 23 September 2021
The Lily Foundation is actively representing the interests of mito patients in a major overhaul of regulations to speed up the process of how new medicines are approved and made available through the NHS.
Research 18 August 2021
The Lily Foundation is proud to be funding the Rare and Undiagnosed Diseases Study (RUDY), a groundbreaking mitochondrial research tool that puts patients in the driving seat.
Research 18 August 2021
How The Lily Foundation worked with the NHS to support families affected by mitochondrial disease. With Professor Rob Taylor and Dr Charulata Deshpande.
Research 27 July 2021
Scientists working with The Lily Foundation have published a new study that could help advance the development of treatments for many serious conditions including neurodegenerative disorders.
Research 24 June 2021
Since the inception of the Leigh Syndrome International Consortium in 2018, we’ve received a number of questions about the organisations involved and the goal of the collaboration. We hope these Frequently Asked Questions will provide better insight into who we are and what we’re working hard to accomplish.
Research 25 May 2021
The Lily Foundation is co-funding research into mitochondrial disease and mood disorders that could change the way we treat mental health in mito patients. Dr Alessandro Colasanti, Senior Clinical Lecturer and Honorary Consultant in Psychiatry at Brighton and Sussex Medical School and Sussex Partnership NHS Foundation Trust, is one of the researchers leading the study.
Research 3 May 2021
The Lily Foundation is funding a study into a potentially life-changing new treatment for mitochondrial patients affected by epileptic seizures. Here to tell us about it is Dr Albert Lim, part of the research team at the Wellcome Centre for Mitochondrial Research in Newcastle.
Research 25 February 2021
The Lily Foundation is very proud to announce its latest investment into scientific research to improve the lives of people with mitochondrial diseases. The charity is co-funding an £80,000 study to explore the links between mito and neuropsychiatric diseases – a blanket term that covers a broad range of medical conditions involving neurology and psychiatry.
Research 8 December 2020
Amanda Male and Sarah Holmes are physiotherapists specialising in neuromuscular and vestibular rehabilitation. Working with colleagues at the NHS Rare Mitochondrial Disorders Service at Queen Square, London, they have developed a new diagnostic framework to identify vestibular (inner ear) causes of balance problems in people with mitochondrial disease. Here they talk about their project, the challenges of working in the Covid pandemic, and how their research can improve quality of life for mito patients.
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