There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.
From personal stories about families affected by the disease to the latest research projects and plenty more, why not sign up to our newsletters, and follow us on social media, to ensure you never miss a thing.
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Personal stories 24 July 2018
Lily fundraiser Neil Harper has a London Classics medal in his sights as he takes on the RideLondon-Surrey 100 for his friend James, who has mitochondrial disease.
Personal stories 30 May 2018
The Lily Foundation, the UK's leading mitochondrial disease charity, has announced that Ben Carter, the top UK marketeer at Just Eat, has been appointed Chair of the charity.
Personal stories 13 April 2018
As Team Lily limbers up for the 2018 London Marathon, Kat Kitto recalls how she ran the biggest race of her life for her daughter Poppy, who has mitochondrial disease.
Personal stories 23 March 2018
Gareth Edwards had tackled Mount Kilimanjaro and had his sights set on Everest when a rare form of mitochondrial disease left him struggling to climb the stairs. Here he talks about what it's like to be diagnosed in your 30s, and why he chose to donate a portion of his company's profits to The Lily Foundation.
Personal stories 23 February 2018
We catch up with Dave Merritt as he prepares to run his 11th London Marathon for The Lily Foundation, the charity set up in his daughter's name.
Personal stories 19 February 2018
When Emily was diagnosed with Leigh Syndrome, a type of mitochondrial disease, at the age of two, doctors told her parents to prepare for the worst. However Emily had other ideas. Now 16 and attending college, she just wants to be treated like any other teenager.
Personal stories 19 January 2018
Twins Lauren and Alex Cianfini share a unique bond that allows them to communicate without words. It's a gift that has proved invaluable in helping the family care for Alex, who has mitochondrial disease and is unable to speak.
Personal stories 4 December 2017
A teenage boy who suffers from mitochondrial disease enjoyed a day to remember after The Lily Foundation arranged for his family to meet stars from X-Factor.
Personal stories 3 October 2017
Congratulations to our daring duo Jon Milne and Sailor Swift, who have made a great start to their circumnavigation of the globe in aid of Lily Foundation. Jon and his teddy bear sidekick, who are sailing in the Clipper Round The World yacht race to raise awareness about mitochondrial disease, have already raised over £1000 on the first leg of their voyage.
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