There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.
From personal stories about families affected by the disease to the latest research projects and plenty more, why not sign up to our newsletters, and follow us on social media, to ensure you never miss a thing.
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Fundraising 21 November 2018
2018 has been a really busy year for The Lily Foundation! We're funding more research, helping more families and making more noise about mitochondrial disease than ever before – and it's all been possible thanks to you, our amazing supporters!
Personal stories 13 November 2018
Oxfordshire wool producer Stuart and his wife Kira suffered heartbreak this April when they lost their three-year-old daughter, Grace, to mitochondrial disease. Stuart turned to competitive shearing as a way to cope, qualified for the national team against the odds, and is now training for the World Shearing Championships. Here, Stuart talks openly about dealing with grief, and the happy memories of Grace that mean so much.
Research 5 November 2018
Members of The Lily Foundation Medical Board were among experts from across the mitochondrial field who attended a conference addressing the issue of potentially harmful drugs used by mitochondrial patients.
Research 16 October 2018
How do you smuggle health-giving enzymes past the body's natural immune system? A Lily-funded project to develop a therapy for MNGIE syndrome is tackling that problem, and looks set to expand scientific understanding of mitochondrial disease in the process. We hear from Dr Bridget Bax, the project's principal investigator at St George's University in London, and postdoctoral research assistant Michelle Levene.
Research 24 September 2018
Three members of The Lily Foundation Medical Board were part of a collaborative team who recently published a study investigating the clinical features of POLG disease in children.
Personal stories 13 September 2018
Charlie was just two years old when she lost her battle with mito. To mark Mito Awareness Week, her Uncle Mike is cycling 771 miles - one for every day of Charlie's life. Here Charlie's dad Steve tells the story.
Awareness 7 September 2018
The Lily Foundation is delighted to be supported by Global's Make Some Noise, an amazing national campaign that gives valuable radio airtime to small charities who are changing young lives.
Personal stories 24 July 2018
Lily fundraiser Neil Harper has a London Classics medal in his sights as he takes on the RideLondon-Surrey 100 for his friend James, who has mitochondrial disease.
Research 12 July 2018
Armed with Charlie her sub-cellular microscope, Eszter Dombi is part of a new generation of talented scientists leading the way in the field of mitochondrial research. Here she talks about her Lily-funded lab work at John Radcliffe Hospital, Oxford.
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